Pauline M. Campos

RT @NeleHelena: Lauren: "I'm against pathologizing normal emotions + behavior when someone goes through something profound like a chronic i…

Do we need to take her nebulizer to the ER with us? Teen just asked me but I have no idea. Looking it up online in case no one responds.

Pretty sure we're heading to the ER for the POTS/EDS/MCAS teen. She's been sick & generally blah w/what we'd hoped was just a sinus infection. But that was 3 weeks ago. She has asthma~Midwest pollen is her kryptonite.

Paging @Crocs - customer service allergy question- re: Croslite & Marimekko product description for classic clog states Croslite now made with 25% cooking oil from other industries. Is this all Croslite going forward or just for this collab? Latex allergy. Thank you.

I'd use my spoons to kick my daughter's EDS/POTS ass first, then wait to power back up & whoop my own mcas's as. I'll o full ghetto - vibe in & always from Detroit - yanking off my wig & earrings first.

Candace D. @DiaryofaSickGrl

If I could get into a fist fight with any of my illnesses it would definitely be my MCAS 👊

Thank you for this.

GC @ThePOTSPostman

“Don’t let your chronic illness take control of you” Oh yeah? How? Because right now it’s in control. If I had control over it I wouldn’t be sick anymore!

Living life on hard mode.

Candace D. @DiaryofaSickGrl

I can’t believe how many of us are just out here wingin it with faulty collagen #ehlersdanlossyndrome

At the ER last night - my reply - a normal person would say 10. This *is* my normal so it's like a 8. Nurse : 👀

Han 🖤 @spoonfulofhan

A chronically ill person can’t use a regular pain scale. An abled person’s baseline would be a 0. Our baseline could be their version of 7 while it’s normal for us. Our tolerance is higher. This is why doctors give us looks when we say “10” and aren’t in a ball crying.

Called an immunologist to see if they take medically complex patients (I have 800+ food, environmental allergies 5 anaphylactic, Behçet's disease (autoimmune), mast cell activation syndrome, & no dr. The receptionist said they don't take autoimmune patients

I have nothing to say except that medical PTSD born from medical gaslighting is very real, debilitating, & absolutely confidence crushing in regards to advocating for chronic illness.

This is my Every Day.

Emily♡ @ItsEmilyKaty

So much of ADHD is about immediacy and urgency. I interrupt people accidentally, find waiting hard, jump from task to task, struggle to think anything through - all because things need doing NOW. If something doesn’t need doing right this very minute, it doesn’t get done.

RT @drjasonfung: New YouTube video - Complete Guide to Reversing Type 2 Diabetes Part 3 - check it out! https://t.co/ehccr45x7p

RT @drjasonfung: Is Intermittent Fasting worth Considering for Your Patients? From Medscape https://t.co/o1Pk8SXiaB