Barts-MS

Welcome to the Barts-MS blog! Our goal is to provide daily updates on the various aspects of multiple sclerosis (MS) research, highlighting both the positive strides and the challenges faced in the field. We want to keep everyone informed about the latest happenings in MS research. Our readership includes MS researchers, healthcare professionals, scientists, students, pharmaceutical industry workers, individuals living with MS, their families, and many others. We strive to create content that caters to a diverse audience, ensuring that our posts are accessible while still conveying important information. We aim to strike a balance by offering articles that help those new to MS understand the basics, as well as insights that will keep seasoned experts informed about key advancements in the field.

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Survey to improve an MS research newsletter

Dec 11, 2023 | multiple-sclerosis-research.org | Alison Thomson

Hello! I’m Joan Vallduriola, a third-year Biomedical science student at QMUL and I am currently undergoing my project on public engagement. I’m reaching out for valuable input in our survey to help improve how we share our studies and research on MS with the public. Your feedback will guide us in enhancing our communication strategies to better serve our community. It should only take 5 minutes to complete and I will use the responses to improve the newsletter for the future.
A new start with MS

Sep 8, 2023 | multiple-sclerosis-research.org | Rachel Horne

“I became a powerlifter at 71. I have a superpower now.”By Rachel HorneIn 2022, life wasn’t looking too rosy for Peeps Nicol. Newly-widowed, feeling ‘very unfit’ due to her age and her MS, she had recently moved from Spain to a static caravan near Weston-super-Mare to be nearer to her daughters. Looking to make friends, she joined her local gym. At first, she tried a few classes and exercise machines, but nothing clicked.
Catheters, cog fog & carers: Life with Advanced MS

Jul 6, 2023 | multiple-sclerosis-research.org | Rachel Horne
When time is of the essence…

May 21, 2023 | multiple-sclerosis-research.org | Rachel Horne
Reviewing the PML risk tool - time for a refresh?

Feb 9, 2023 | multiple-sclerosis-research.org | Alison Thomson

We have two undergraduate students reviewing our PML (Progressive Multifocal Leukoencephalopathy) risk information tool on Clinic Speak. We created the PML information based on patient input years ago, but feel it’s time to update it and take a closer look at how it’s being used. That’s why we are conducting this survey to gather your thoughts and opinions. Your participation in the survey will help us evaluate the current risk communication and identify areas for improvement.
Prodromal MS and RIS - survey feedback

Jan 28, 2023 | multiple-sclerosis-research.org | Alison Thomson

I, Iraj Arfat a student at QMUL, would like to thank everyone who read and interacted with my previous blog post. The responses have been very helpful in giving an insight into what professionals and patients think about prodromal multiple sclerosis (MS). Survey Results:The survey results were very interesting.
Public Engagement Recap 2022

Jan 23, 2023 | multiple-sclerosis-research.org | Alison Thomson

As we welcome the new year, we’re excited to start planning for more engagement activities for the months ahead. As we plan, we’re taking a moment to look back on last year’s events. One of the highlights was undoubtedly ECTRIMS, which transitioned back to an in-person format after a fully digital experience in 2021. We want to extend a heartfelt thank you for your participation.
MSexism: Does the European Charcot Foundation have a women problem?

Nov 13, 2022 | multiple-sclerosis-research.org | Rachel Horne
MS, Virginia Woolf and the Raverats

Jul 31, 2022 | multiple-sclerosis-research.org | Rachel Horne
MS = Menopause Silence

Jun 11, 2022 | multiple-sclerosis-research.org | Rachel Horne