Bio News

Bio.News is a daily online news platform that delves into the exciting world of biotechnology and how it interacts with both U.S. and global policies. Our team of independent journalists from various parts of the globe covers this rapidly evolving industry, highlighting how different levels of government can either promote or hinder biotech advancements and investments. Additionally, we provide insights from leading scientists and biotech executives, discussing ways to propel the biorevolution forward.

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U.S. leadership in rare disease drugs at risk, BIO expert tells Orphan Drug Congress

1 week ago | bio.news | Clary Estes

America has long been the global leader in rare disease drug development but this leadership is at risk unless Congress protects key incentivesIn 1983, President Reagan signed the Orphan Drug Act into law. This landmark legislation, the first of its kind in the world, created vital incentives for rare disease drug development. The success speaks for itself—orphan drug approvals increased from just 38 before the law was signed to more than 880 by the end of 2022.
Show Me the Evidence: Data to Understand and Break Down Patient Access Barriers!

2 weeks ago | bio.news | Clary Estes

“Data makes you credible; stories make you memorable,” began Amy Niles, Chief Mission Officer of the PAN Foundation, during the Biotechnology Innovation Organization’s (BIO) monthly patient advocacy coffee chat entitled “Show Me the Evidence: Data to Understand and Break Down Patient Access Barriers!” The webinar focused on the role of data in advocating for policy change.
World Hemophilia Day: Raising awareness of the need for a cure

1 month ago | bio.news | Clary Estes

April 17 is World Hemophilia Day, and in commemoration, Bio.News sat down to talk with the National Bleeding Disorders Foundation (NBDF) about the importance of finding cures for Hemophilia and other inheritable blood and bleeding disorders. The Foundation strives to address the need for cures and prevention of complications from these disorders through research, education, and advocacy, enabling people and families to thrive.
Eight themes of vaccine hesitancy that could surprise people

1 month ago | bio.news | Clary Estes

According to a new study, vaccine hesitancy is a deeper issue than the prevalence of misinformation online. Rather, it reflects a deep mistrust in institutions and subsequent emotional response to perceived coercion.
How cross-sector collaboration drives rare diseases cures

1 month ago | bio.news | Clary Estes

April is Sarocoidosis Awareness Month, an opportunity to raise awareness, promote understanding and research, and create hope for the affected patients and their families.
Sepsis and AMR: Understanding the connection and the growing threat to public health

1 month ago | bio.news | Clary Estes

As part of BIO’s March Patient Advocacy Coffee Chat, Thomas Heymann, President & CEO of Sepsis Alliance, spoke about sepsis—a life-threatening condition caused by the body’s immune system overreacting to an infection—and its link to rare diseases and antimicrobial resistance (AMR). Antimicrobial resistance—or AMR—occurs when the bacteria, viruses, or fungi that make people sick adapt to the antimicrobial medicines designed to treat them and become resistant to those medications.
Why reauthorization of the Rare Pediatric Disease Priority Review Voucher (PPRV) Program is vital

2 months ago | bio.news | Clary Estes

The Food and Drug Administration’s (FDA) Rare Pediatric Disease Priority Review Voucher (PPRV) Program was top of mind during BIO’s March Patient Advocacy Coffee Chat: Show Your Stripes! The conversation brought together patient advocacy leaders and illustrated both the urgent need for incentives to support rare disease drug development and the power of patient advocacy.
International Women's Day: Improving women’s health by addressing autoimmune disease

2 months ago | bio.news | Clary Estes

March 8th is International Women’s Day and to mark the occasion, Bio.News is exploring an under researched field of women’s health – autoimmune diseases – with the Society for Women’s Health Research. Despite women making up half of the population, women’s health is still woefully researched and underfunded. This is not only to the detriment of women, but also to biotech innovation as a whole.
Kidney Action Week: 4 things you need to know about kidney disease

2 months ago | bio.news | Clary Estes

“Kidney disease is a major and growing public health concern,” LaVarne A. Burton, American Kidney Fund President and CEO, said in an interview with Bio.News.
The role of the patient voice in CMS drug price 'negotiation'

2 months ago | bio.news | Clary Estes

The Centers for Medicare & Medicaid Services (CMS) recently announced the 2025 selection of 15 drugs covered under Medicare Part D for price “negotiations” under the Inflation Reduction Act (IRA). The list covers many therapeutic areas, from diabetes and cancer to asthma, arthritis, and more.