
Articles
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1 week ago |
nature.com | Alison Abbott
Daiza Gordon watched her two younger brothers die when they were adolescents. They had Hunter syndrome, a rare, incurable disease — predominantly affecting boys — in which a gene for an important enzyme is missing. Guilt compounded her grief when her attempts to resuscitate her youngest brother failed. She was just 19 years old. Gordon went on to discover how merciless genetics can be. Her own three sons were all born with the condition.
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Dec 20, 2024 |
nature.com | Alison Abbott
Andrew Cassy had spent his working life in a telecommunications research department until a diagnosis of Parkinson’s disease in 2010 pushed him into early retirement. Curious about his illness, which he came to think of as an engineering problem, he decided to volunteer for clinical trials. “I had time, something of value that I could give to the process of understanding the disease and finding good treatments,” he says. In 2024, he was accepted into a radical trial.
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Jul 5, 2024 |
medrxiv.org | Genevieve N. Healy |Ana D Goode |Alison Abbott |Lisa Ulyate
The BeUpstanding program does include consultancy options within the toolkit. All and any proceeds from consultancy activities return to the research to continue to develop the research program. ACTRN12617000682347The BeUpstanding program was supported by funding from the Queensland Government Healthier. Happier.
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Jun 19, 2024 |
nature.com | Alison Abbott
Like many in the United States, Kate Starbird saw a surge in misinformation in the build-up to the 2016 US presidential election between Donald Trump and Hillary Clinton. Everyone was talking about ‘fake news’ — fabricated stories that were widely shared on social media and designed to sway the election. But unlike most people, Starbird was equipped to investigate the problem.
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