Alliah Czarielle

Oct 29, 2024 | hemophilianewstoday.com | Andrea Lobo |Lindsey Shapiro |Joe MacDonald |Alliah Czarielle

People with hemophilia are more likely to be infected with the SEN virus (SENV), which is associated with blood transfusion hepatitis, or liver inflammation, than healthy people, a study in Iran suggests. The virus was detected in more than half of patients with hemophilia A and most commonly in those with more severe disease.

Sep 13, 2024 | hemophilianewstoday.com | Margarida Maia |Lindsey Shapiro |Joe MacDonald |Alliah Czarielle

Almost two-thirds of men with moderate or severe hemophilia A have joint problems that cause pain and reduce their quality of life, even when they’re on factor replacement therapy to reduce the frequency of bleeding episodes, a real-world study shows. “Overall, the data indicate that joint problems still represent a substantial burden in the care of [hemophilia A],” the researchers wrote.

Sep 5, 2024 | hemophilianewstoday.com | Cazandra Campos- MacDonald |Joe MacDonald |Lindsey Shapiro |Alliah Czarielle

I live in the high desert of New Mexico, where we have each year. It’s a perfect place to hike, bike, climb, and run. The beauty of this place is undeniable. Yet despite all its splendor, I often find myself yearning for the storms. Right now, we’re in the monsoon season, which typically runs from June through September. This period brings heavy rains in the evenings, a nice break from the daytime heat of the summer sun.

Sep 5, 2024 | hemophilianewstoday.com | Joe MacDonald |Lindsey Shapiro |Alliah Czarielle |Katherine Poinsatte

I must admit that, as a father, I dreamed of greatness for my sons. While Cazandra, my wife, was pregnant with each of my boys, I envisioned a global career for them that would transform the world. With my measurement of success as a guiding light, I imagined the ease with which they’d achieve their dreams. In my fantasy, they wouldn’t struggle or want for anything.

Sep 2, 2024 | hemophilianewstoday.com | Alliah Czarielle |Esteban Cerezo |Cazandra Campos- MacDonald

For many millennial families, the dining table has become somewhat of a relic. What was once a central feature of family life — where meals were shared, stories told, and connections made — is now increasingly overlooked. It’s a trend I’ve seen in many homes, including my own, where we opt to eat from the comfort of couches, beds, or even the floor. For a long time, my family didn’t use a dining table.