Alliah Czarielle

1 month ago | hemophilianewstoday.com | Alliah Czarielle

I recently stumbled across a passage on social media referring to relationships: “If you want a garden? Take care of it. You want love? Love them.”Something about those simple words struck a chord with me. Instinctively, I forwarded it to my husband, Jared. “This is exactly why I’ve been wanting to work on myself,” he responded.

2 months ago | hemophilianewstoday.com | Andrea Lobo |Patricia Inacio |Alliah Czarielle |G Shellye Horowitz

Despite high rates of bone health issues in hemophilia and von Willebrand disease (VWD), the routine use of DEXA scans remains low across hemophilia treatment centers (HTCs) in the U.S., a study reports. DEXA, or dual-energy X-ray absorptiometry, is a type of imaging test that uses low-dose X-rays to measure bone density and check for osteoporosis, which is where bones become weaker and more likely to break.

Mar 4, 2025 | hemophilianewstoday.com | Jacob Harney |Alliah Czarielle |Jennifer Lynne |Mary Chapman

March is Bleeding Disorders Awareness Month (BDAM), and patients, caregivers, advocates, and supporters are working together to call attention to and provide resources for coping with the bleeding disorders estimated to affect more than 3 million people in the U.S.Bleeding disorders such as hemophilia, von Willebrand disease, and rare clotting factor deficiencies are marked by the body’s inability to form blood clots.

Feb 25, 2025 | hemophilianewstoday.com | Marisa Wexler |Lindsey Shapiro |G Shellye Horowitz |Alliah Czarielle

The Loma Linda University Health (LLUH) Hemophilia Treatment Center has become the first clinic in California offering Hympavzi (marstacimab) for people with hemophilia B. “For the first time, patients with hemophilia B in Southern California have access to a therapy that is not just effective, but also drastically improves their daily lives,” Akshat Jain, MD, director of the Hemophilia Treatment Center at LLUH, said in a news story from the clinic.

Feb 17, 2025 | hemophilianewstoday.com | Alliah Czarielle |G Shellye Horowitz |Joe MacDonald

When people talk about hemophilia, some deliberately avoid calling it a disability. Instead, they’ll say “a medical condition” or “a health challenge,” as if disability were a negative label. Some who embrace the positive thinking movement even argue that people with hemophilia shouldn’t see it as a disability, pushing the idea that they should overcome their limitations at all costs.