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Jan 22, 2025 | 
ancavasculitisnews.com | Margarida Maia |Marisa Wexler |Allison Ross
Physicians typically do not overestimate the overall health of people with ANCA-associated vasculitis (AAV), a study of global assessments made by patients and their doctors in Australia reports. In cases where ratings between these two groups markedly differed, doctors tended to assign a lower score than did the people evaluating their own health.
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Jan 13, 2025 | 
ancavasculitisnews.com | Margarida Maia |Allison Ross |Katherine Poinsatte |Andrea Lobo
Adicet Bio has pushed to the second half of 2025 the expected timing for enrolling patients with ANCA-associated vasculitis (AAV) in an ongoing Phase 1 clinical trial testing ADI-001, an experimental CAR T-cell therapy for a number of autoimmune diseases.
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Nov 27, 2024 | 
ancavasculitisnews.com | Andrea Lobo |Lindsey Shapiro |Allison Ross |Margarida Maia
Most children with granulomatosis with polyangiitis (GPA) have respiratory manifestations including cough and shortness of breath at diagnosis, and these frequently persist or relapse, according to a study in the U.S. involving 13 pediatric patients. Lung abnormalities were detected in nearly all children with available imaging data at diagnosis regardless of respiratory symptoms.
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Oct 9, 2024 | 
ancavasculitisnews.com | Esteban Cerezo |Andrea Lobo |Allison Ross |Mary Chapman
The Vasculitis Foundation has announced the launch of a new support group for young adults with vasculitis, a group of autoimmune conditions that includes ANCA-associated vasculitis (AAV). The group will promote connections among young adults, from 18 to 30 years of age, living with vasculitis, which is marked by blood vessel inflammation.
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Aug 14, 2024 | 
ancavasculitisnews.com | Margarida Maia |Patricia Inacio |Lindsey Shapiro |Allison Ross
Conduit Pharmaceuticals is planning to launch Phase 2a clinical trials to test its lead oral candidate AZD1656 in people with immune system disorders — specifically ANCA-associated vasculitis (AAV) as one indication.
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Jun 5, 2024 | 
ancavasculitisnews.com | Patricia Inacio |Allison Ross |Margarida Maia |Andrea Lobo
Sinonasal manifestations — those encompassing the nose and the paranasal sinuses, or the air-filled cavities around the nose — in granulomatosis with polyangiitis (GPA) vary among patients, based on disease activity and duration. That’s according to a small, retrospective study of GPA patients with sinonasal manifestations seen at a single center in Japan. Most nasal manifestations observed at diagnosis eased with treatment, while most sinonasal CT findings remained unchanged.
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May 31, 2024 | 
ancavasculitisnews.com | Vanda Pinto |Allison Ross
Christine MacFadyen’s symptoms appeared 15 years ago, and she was diagnosed five years ago. (Photos courtesy of Christine MacFadyen) This is Christine MacFadyen’s story:I was a fun-loving, always smiling, energetic, adventurous woman. I was only 24 and had just graduated with my college degree in early childhood care and education. I was excited to start a career that fed my passion.
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May 29, 2024 | 
ancavasculitisnews.com | Allison Ross
Sarah Wellings, left, smiles with Isla Bell before her ANCA vasculitis diagnosis. (Photos courtesy of Sarah Wellings) This is Sarah Wellings’ story:Last night I dreamed I was running again. It seems my running days are over. Don’t get me wrong, I was no athlete when I was healthy, but I could run to catch a bus! I now do a lovely gentle exercise class. Positive aspects.
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May 22, 2024 | 
ancavasculitisnews.com | Allison Ross
Rob Nelson explores Peggy’s Cove in Nova Scotia, Canada, in fall 2021. (Photos courtesy of Rob Nelson) This is Rob Nelson’s story:Receiving a vasculitis diagnosis has a dramatic effect physically, emotionally, and socially on both those with the disease and their families. Like many conditions, vasculitis directly and indirectly puts a strain on household finances.
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May 15, 2024 | 
ancavasculitisnews.com | Allison Ross |Yedida Y Bogachkov
Karna Karlsrud, left, poses for a photo with her daughter, Clea, who has vasculitis. (Photos courtesy of Karna Karlsrud) This is Karna Karlsrud’s story:When I adopted my beautiful daughter, Clea, 23 years ago, the social worker told me in many conversations that fantasy is worse than reality, so I should practice telling my child her birth story, aka her adoptive story, when she was very little.
