Ashley Ball-Gamble

Jul 16, 2024 | digitalcommons.library.tmc.edu | Susie Aldiss |Rachel Hollis |Bob Phillips |Ashley Ball-Gamble

OBJECTIVES: To engage children who have experienced cancer, childhood cancer survivors, their families and professionals to systematically identify and prioritise research questions about childhood cancer to inform the future research agenda. DESIGN: James Lind Alliance Priority Setting Partnership. SETTING: UK health service and community. METHODS: A steering group oversaw the initiative. Potential research questions were collected in an online survey, then checked to ensure they were unanswered.

Dec 21, 2023 | bmjopen.bmj.com | Susie Aldiss |Rachel Hollis |Bob Phillips |Ashley Ball-Gamble

paediatric oncologypatient participationsurveys and questionnairespaediatric oncologyWe made use of the well-established and transparent James Lind Alliance methodology and clearly describe the process and decision-making which led to the final Top 10 research priorities. The process followed ensures that these priorities came directly from those who are the most affected by childhood cancer but rarely influence the research agenda.