Brian Vastag

2 months ago | issues.org | Brian Vastag |Jay Lloyd |Vol. XLI

Patient advocates are cautiously optimistic that forthcoming studies will track their concerns and lead to treatments. In 2021, Robert DeRosa sought treatment for crushing fatigue, unexplained pains, loss of teeth, gastrointestinal distress, and other symptoms that had persisted for nearly a year following a COVID-19 infection. His physician, a pulmonologist working at a newly set up long COVID treatment center, told him he was just deconditioned.

Oct 10, 2023 | sandiegouniontribune.com | Brian Vastag

Amanda Twinam’s journey to understand her decadeslong fatigue began with a breast cancer diagnosis at age 28. Twinam underwent a mastectomy before enduring chemotherapy. The medicines made her sick and triggered seizures, which eventually brought her to a rheumatologist. That doctor found a marker for autoimmune diseases in Twinam’s blood. And yet, none of the proposed diagnoses fully fit.

Sep 27, 2023 | independent.co.uk | Brian Vastag

Amanda Twinam’s journey to understand her decades-long fatigue began with a breast cancer diagnosis at 28. Amanda underwent a mastectomy before enduring chemotherapy. The medicines made her sick and triggered seizures, which eventually brought her to a rheumatologist. That doctor found a marker for autoimmune diseases in Amanda’s blood. And yet, none of the proposed diagnoses fully fit.

Sep 24, 2023 | infobae.com | Brian Vastag

El viaje de Amanda Twinam para entender su fatiga de décadas comenzó con un diagnóstico de cáncer de mama a los 28 años. Twinam se sometió a una mastectomía antes de recibir quimioterapia. Los medicamentos la enfermaron y le provocaron convulsiones, lo que acabó llevándola a un reumatólogo. Ese médico encontró un marcador de enfermedades autoinmunes en la sangre de Twinam. Sin embargo, ninguno de los diagnósticos propuestos encajaba del todo.

Sep 19, 2023 | calgaryherald.com | Brian Vastag

Advertisement 1 Dogged efforts by a single patient led to a new scientific discovery at the National Institutes of Health and a promising new line of research that may end up helping many other people with chronically fatiguing illnesses, possibly including long COVID.  •  Article content Amanda Twinam’s journey to understand her decades-long fatigue began with a breast cancer diagnosis at age 28. Twinam underwent a mastectomy before enduring chemotherapy.