Chris Rice

Feb 29, 2024 | publicpolicyprojects.com | Chris Rice |Gabriel Blaazer

By Dr Chris RiceThe history of Rare Disease Day stretches back to 2008, when a handful of countries came together to bring attention to this often-overlooked community. Since then, the movement has grown exponentially, with over 100 countries participating in awareness campaigns, fundraising events, and advocacy efforts worldwide. For the estimated 300 million individuals living with rare diseases worldwide, each day is a battle against the unknown.

Oct 16, 2023 | integratedcarejournal.com | Chris Rice

By Last week, ICJ attended the RAREsummit23, organised by the Cambridge Rare Disease Network. Hosted at the Wellcome Genome Campus in Hinxton, the RAREsummit23 was an event that brought together the rare disease community, including patients, caregivers, clinicians, and service-providers, and highlighted the experiences of people living with rare conditions.

Aug 21, 2023 | publicpolicyprojects.com | Chris Rice

By - In recent years there have been significant advancements in the field of genomics, which have allowed researchers to map and understand the function of the total genetic material present in a patient. However, the NHS has been slow to take advantage of these breakthroughs.

Aug 21, 2023 | publicpolicyprojects.com | Chris Rice

By - In recent years there have been significant advancements in the field of genomics, which have allowed researchers to map and understand the function of the total genetic material present in a patient. However, the NHS has been slow to take advantage of these breakthroughs.