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1 month ago | 
alsnewstoday.com | Dagmar Munn |Kristin Neva
The other day, my husband spotted me putting on my sneakers while using a long shoehorn and asked, “Wouldn’t that be a lot easier if we got you a pair of those new step-in shoes?”I’ll admit that living with ALS has me continually thinking of ways to make my life easier. But it’s also made me super picky about my shoes. So without looking up, I mumbled, “I don’t know, maybe.
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1 month ago | 
alsnewstoday.com | Lindsey Shapiro |Dagmar Munn |Marisa Wexler
NUZ-001, which was previously known as monepantel, slowed lung function declines by nearly 50% in people with amyotrophic lateral sclerosis (ALS), according to new analyses from a Phase 1 trial. This slowing of respiratory declines was strongly correlated with slower declines in overall function that were observed in previous analyses.
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1 month ago | 
alsnewstoday.com | Dagmar Munn |Margarida Maia |Kristin Neva
If you’ve been keeping up with my recent columns, you’ve likely figured out that even though I have ALS, I maintain a glass-half-full attitude. So, today, I thought you’d enjoy learning how I deal with what has been a constant challenge for me: plastic bottles. The trouble with plastic bottles is that they have lids — all kinds of lids.
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1 month ago | 
alsnewstoday.com | Margarida Maia |Lindsey Shapiro |Dagmar Munn |Juliet Taylor
Health Canada has invited Neurosense Therapeutics to discuss the potential for giving conditional approval to PrimeC in treating amyotrophic lateral sclerosis (ALS), according to a company filing with the U.S. Securities and Exchange Commission.
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1 month ago | 
alsnewstoday.com | Kristin Neva |Juliet Taylor |Dagmar Munn
After decades of classic cross-country skiing, I realized that the groomed track is too wide for me, and it got me thinking how difficult it is to find single solutions to help everybody with ALS. We had springlike weather this past week in Michigan’s Upper Peninsula, and I got out on Michigan Tech’s ski trails on a 50-degree afternoon. Getting exercise and being in nature help me manage the stress of my husband’s ongoing decline because of ALS.
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2 months ago | 
alsnewstoday.com | Kristin Neva |Dagmar Munn
“I can’t believe I could’ve had longer footrests this whole time,” my husband, Todd, said this morning as he peered down on his wheelchair while I transferred him using our overhead lift. “I’ve been so nervous about my toes, especially now that I’m having such a hard time driving.”Todd got his power wheelchair 11 years ago, after ALS had taken his ability to walk.
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2 months ago | 
alsnewstoday.com | Dagmar Munn |Marisa Wexler |Juliet Taylor |Margarida Maia
I’ve been living with ALS for the past 15 years, and although it’s filled my days with life lessons and moments of gratitude, there have also been many twists of irony. One of the biggest ironies? I sometimes feel out of place in a community that’s so warm and welcoming. Why? Because I’m what’s called a “slow progressor.”While ALS is known for symptoms that quickly and constantly worsen, mine have advanced at a much slower pace compared with most patients.
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2 months ago | 
alsnewstoday.com | Marisa Wexler |Margarida Maia |Dagmar Munn |Lindsey Shapiro
Fat molecules called polyunsaturated fatty acids, or PUFAs, can help lessen nerve damage in amyotrophic lateral sclerosis (ALS), according to a study of fruit flies and cell models. Previous studies have shown that consumption of omega-3 fatty acid, a type of PUFA, is associated with a lower risk of developing ALS as well as slower ALS progression in people with the disease. The study’s results offer a potential explanation for those associations.
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2 months ago | 
alsnewstoday.com | Kristin Neva |Dagmar Munn
Lines from a Shania Twain song have been running through my head the past few days: “You’re still the one I run to/ The one that I belong to/ You’re still the one I want for life.” The lyrics remind me of how my husband, Todd, and I partner together amid the stress of living with ALS. The past few weeks have been rough for us since Todd caught a respiratory virus on top of dealing with quadriplegia and reduced lung function from ALS.
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2 months ago | 
alsnewstoday.com | Dagmar Munn |Kristin Neva |Margarida Maia
Before ALS entered my life, I barely noticed how easily I completed simple, everyday tasks. But living with ALS can be tiring, and it makes everything — including the little things, our run-of-the-mill habits — feel difficult and tedious. I reached the point where I contemplated giving them up entirely. “Will this be another win for ALS?” I asked myself. “Nope,” I answered, “not gonna let it.
