
Articles
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1 week ago |
rarediseaseadvisor.com | Ed Tobias
Change can be good. For months, I’d been bothered by leg pain, which I’d chalked up as just my multiple sclerosis (MS) doing its thing. Sometimes it was an ache in one hip. Or the other. Or both. Sometimes it was a sharp pain, shooting from my left hip and traveling down into my thigh via what I assumed to be my sciatic nerve. My glutes always ached. Recently, lying in bed at night, I’d had very painful cramps along my left shin, extending down to the top of my foot.
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3 weeks ago |
rarediseaseadvisor.com | Ed Tobias
I like to play games. The Words With Friends app and online puzzles, like Connections on the New York Times app, keep me thinking. Online games can be important to someone with multiple sclerosis (MS), where cognitive fog and fatigue are both common symptoms. So I was very interested when I was offered the chance to try a website and app called BrainHQ. It’s designed to help improve the brain’s processing speed and, by doing that, help improve things like cognition and fatigue.
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1 month ago |
rarediseaseadvisor.com | Ed Tobias
The headline on the news release that dropped into my inbox recently read: “FDA Announces Plan to Phase Out Animal Testing Requirement for Monoclonal Antibodies and Other Drugs.”Take animals out of the drug approval process? Really? Monocolonal antibody therapies are some of the highest efficacy treatments in the multiple sclerosis (MS) arsenal. They include natalizumab (Tysabri), alemtuzumab (Lemtrada), ocrelizumab (Ocrevus), ofatumumab (Kesimpta), and ublituximab (Briumvi).
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1 month ago |
rarediseaseadvisor.com | Ed Tobias
Have you ever looked at a research paper and thought, “Why in the world did they waste time and money on that?” I saw one of those reports the other day about multiple sclerosis (MS) fatigue and life quality. The news was headlined “Fatigue significantly contributes to impaired well-being in MS.”The Finnish researchers studied data from more than 500 patients with MS.
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1 month ago |
rarediseaseadvisor.com | Ed Tobias
I’m writing this from Deck 14 on the cruise ship Celebrity Beyond. Cruising isn’t new to me, but it’s often a challenge because of my multiple sclerosis (MS) mobility problems. This trip hasn’t been any different. I try to plan for all possibilities, of course. Accessible stateroom? Check. Confirm that onshore excursions can handle me with my scooter. Check. Prescription Scopolamine patches to wear behind my ear to prevent seasickness? Check.
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