Jeanette Boyd

Dec 6, 2023 | thelancet.com | Byrnes CA |Anne B. Chang |Jeanette Boyd

NHMRC Centre for Research Excellence in Paediatric Bronchiectasis (AusBREATHE), Child Health Division, Menzies School of Health Research, Charles Darwin University, Darwin, NT, AustraliaDepartments of Infectious Disease and Paediatrics, Gold Coast Health, Gold Coast, QLD, AustraliaSchool of Medicine and Dentistry and Menzies Health Institute Queensland, Griffith University, Gold Coast, QLD, Australia

Mar 1, 2023 | breathe.ersjournals.com | Courtney Coleman |Olivia Fulton |Jeanette Boyd |Clare Williams

Develop clear roles and expectations for patients and carers involved in the project. Clearly outline the anticipated commitment from patient representatives, including the number of meetings per year, if attendance is expected in person or virtually, and any extra commitments such as reading documents or inputting into email discussions. Be conscious of overburdening patient representatives, especially if the number of patients involved is small.