Jessica Lynn

Writer at Patient Worthy

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Articles

Had High BMI as a Child? Your Risk of Chronic Kidney Disease (CKD) in Adulthood May Be Heightened

1 month ago | patientworthy.com | Jessica Lynn

Editor’s Note: Chronic conditions and rare diseases don’t discriminate, Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, click here to learn more about how your voice can help spread awareness and inspire individuals from all walks of life. Body mass index (BMI) is a value derived from someone’s weight and height that indicates weight categories that could lead to health issues.
WHAT THE C@H?!: How This Educational Initiative Supports the Congenital Adrenal Hyperplasia (CAH) Community

Oct 17, 2024 | patientworthy.com | Jessica Lynn

For over three decades, Neurocrine Biosciences, Inc. has been working to support individuals with neurological, neuroendocrine and neuropsychiatric disorders through the development of breakthrough treatment options. One of the company’s key focuses is developing a novel therapy for individuals living with congenital adrenal hyperplasia (CAH). A rare genetic disorder, CAH often presents significant challenges for those affected, their families, and even healthcare providers.
Miplyffa’s Approval Ignites Hope for the Niemann-Pick Type C (NPC) Community

Oct 3, 2024 | medium.com | Jessica Lynn

Jessica Lynn·FollowPublished inRareatives·6 min read·--There are moments, as a journalist, when the line between professional observer and engaged community member blurs. For me, covering the rare disease community has been filled with such moments — especially considering my own rare disease story. When I was a child, I was diagnosed with a rare condition that causes blood vessel inflammation throughout the body. Luckily, with early diagnosis and treatment, I have no lasting impacts on my heart.
Two Attendees Discuss the Marfan Foundation's Global Virtual Conference

Aug 27, 2024 | patientworthy.com | Jessica Lynn

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.
He’s “1 of 20” But His Impact Extends Past Rare Disease

Aug 23, 2024 | patientworthy.com | Jessica Lynn

Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more. Jonathan Cappiello was born on April 14, 1999. His dramatic entrance into the world came three weeks early and marked by a potential medical complication: his umbilical cord was wrapped tightly around his neck.
Fecal Transplants Ineffective: Parkinson's Disease

Aug 20, 2024 | patientworthy.com | Jessica Lynn

Fecal microbiota transplants (FMTs) take healthy bacteria from stool provided healthy individuals, and transfer it to a donor with gut microbiome dysbiosis. Typically, fecal transplants are performed to treat C. difficile infections and prevent C. difficile from returning. However, the medical field is beginning to explore fecal transplants as a potentially therapeutic option in other indications, such as ulcerative colitis or Parkinson’s disease.
Seventh Person Cured of HIV

Aug 19, 2024 | patientworthy.com | Jessica Lynn

Globally, an estimated 39.9 million people live with human immunodeficiency virus (HIV). HIV is an infection which, over time, damages the immune system. This condition can be spread through sexual contact, contact with infected blood, or from mother to child during pregnancy. By the time HIV becomes symptomatic, individuals may experience fever, fatigue, swollen lymph nodes, weight loss, oral thrush, shingles, pneumonia, and diarrhea. Eventually, the condition might progress to AIDS.
Promising Treatments for Dermatomyositis

Aug 12, 2024 | patientworthy.com | Jessica Lynn

In some cases, dermatomyositis can be difficult to treat. A variety of treatment options are available, from corticosteroids and immunosuppressants to antimalarials, colchicine, alendronate, and warfarin. But this rare condition usually requires a personalized treatment response that addresses not just the symptoms, but the underlying physiology. However, shared Stanford’s Dr. David Fiorentino, MD, PhD in a video with Healio, the future may be changing for dermatomyositis.
Bipolar Disorder Can Feel Flu-Like: Why?

Aug 9, 2024 | patientworthy.com | Jessica Lynn

Have you ever heard of cytokines? These signaling proteins play a role in inflammation in your body. Normally, cytokines help your immune system respond to foreign invaders. But when too many cytokines are present, it can cause excess inflammation – and you might not feel very well. Physical and emotional stress, low physical activity, poor sleep, and a diet heavy in processed sugars can all increase cytokine levels.
Orphan Drug: AMX0035 for Wolfram Syndrome

Aug 6, 2024 | patientworthy.com | Jessica Lynn

Rare disease drug development can be challenging. Countries globally developed programs to incentivize innovation and development in this space. One of these initiatives is the designation of orphan drugs, or therapies used to treat rare and underserved conditions for which there’s a lack of existing or adequate treatment.