Jodi Enders

Feb 10, 2025 | myastheniagravisnews.com | Shawna Barnes |Marisa Wexler |Jodi Enders

Living with myasthenia gravis (MG) can feel like riding an unpredictable roller coaster. Some days, we coast along smoothly, while on others, it’s like the track was built by a mischievous toddler with a love for loops. With fluctuating muscle strength and fatigue, learning to love and care for the body we’re in becomes a daily practice. Over the last three years, I’ve shared my journey here on “The Whispered Roar” and discussed ways to show ourselves kindness despite MG’s challenges.

Jan 24, 2025 | myastheniagravisnews.com | Allen Francis |Jodi Enders |Shawna Barnes |Sarah Bendiff

Dr. Seuss once said, “Sometimes you will never know the value of a moment until it becomes a memory.” That’s another way of saying you never know what you have until it’s gone, whether it’s a relationship, a material item, or a mindset (such as innocence). It’s nice to remember things the way we want to remember them. Or perhaps we project what we want to see. In 2010, I noticed a pimple protruding from my right shoulder. It didn’t feel like a pimple, though.

Jan 17, 2025 | myastheniagravisnews.com | Allen Francis |Jodi Enders |Sarah Bendiff |Andrea Lobo

Identity is how we define ourselves, and it can be established through nature or nurture, voluntarily or not. Part of our identity may even be shaped by the person we imagine ourselves to be or hope to become. A vocation, career, or profession can also be a mark of identity. Retirees sometimes experience depression because, after a lifetime of work, they feel devoid of the identity that their job provided them.

Jan 9, 2025 | myastheniagravisnews.com | Sarah Bendiff |Michelle Gonzaba |Shawna Barnes |Jodi Enders

Traveling was one of my biggest fears after my myasthenia gravis diagnosis in 2019. If I got tired at home easily, what would navigating an airport and exploring a bustling city feel like? A few years ago, when my father suggested my sister and I visit a European country before our Italian visa expired (I will write more about this soon), I chose Paris. Who could resist? Plus, given the historical ties between Algeria, where I live, and France, I’m more familiar with the French system and language.

Sep 23, 2024 | myastheniagravisnews.com | Shawna Barnes |Lindsey Shapiro |Jodi Enders |Retha De Wet

Snow in September? Last week I got a new tattoo. The session was my husband’s gift for our anniversary this year. I told the tattoo artist that I wanted something to mark my myasthenia gravis (MG): a snowflake with the color teal, incorporated into some sort of bracelet style.