Jodi Ettenberg
Founder and Writer at Legal Nomads
Once a lawyer, then a travel & food writer. Now disabled, writing about curiosity, health, & loss. Bylines: @CNN @BBC @Guardian & more.
Articles
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3 weeks ago |
jodiettenberg.com | Jodi Ettenberg
The following is an expansion of my talk at this year’s Spinal CSF Leak: Bridging the Gap conference, which took place on November 2-3, 2024 in Aurora, Colorado. As with last year’s presentation, I spoke about the complexity of my case, but this year I was asked to address why I’ve deferred treatment and how I’ve managed to make peace with that decision. The time allotted was quite short, and there was a lot I did not get to include.
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2 months ago |
everythingisamazing.substack.com | Mike Sowden |Jodi Ettenberg
Hello again! This is Everything is Amazing, a newsletter about science, curiosity and wonder - and, this season, what’s right above our heads. It’s been a really tough week for science in the United States (and outside it, because of the internationally collaborative nature of research). The growing chaos unleashed by Trump’s administration has been really hard to watch, and it clearly isn’t over yet.
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Dec 8, 2024 |
jodiettenberg.substack.com | Jodi Ettenberg
Welcome back to the Curious About Everything Newsletter! CAE 44, last month’s newsletter, is here, if you missed it. The most popular link from last month was Ryan McCormick’s post about the parasympathetic nervous system. This newsletter is free because my other work — my writing on Patreon (monthly membership), my hand-drawn maps of food, and my celiac translation cards — all support me enough to pay the bills.
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Nov 4, 2024 |
jodiettenberg.substack.com | Jodi Ettenberg
Welcome back to the Curious About Everything Newsletter! CAE 43, last month’s newsletter, is here, if you missed it. The most popular link from last month was the read about Wim Hof’s history of domestic violence and abuse. Yesterday, I had the honour of presenting my story to a room of patients and physician experts in spinal CSF leak, as well as an audience from 32 countries virtually.
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Oct 6, 2024 |
jodiettenberg.substack.com | Jodi Ettenberg
Welcome back to the Curious About Everything Newsletter! CAE 42, last month’s newsletter, is here, if you missed it. The most popular link from last month was my article about my August hospital visit and the futility of preemptive catastrophizing. After getting shingles, I’ve slowly gotten back in the saddle with my volunteering at the Spinal CSF Leak Foundation.
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I got emails saying that I ought to “fight harder” to get better, & in frustration, I wrote this piece. It shares more about why I’ve not gotten surgery, & has quotes & artwork from other complex spinal CSF leak patients. https://t.co/zxPOMi7H9W
RT @AndrewCallenMD: New #CSFLeak paper 📝 in @theAJNR: a patient-physician collaboration to develop a structured reporting system for myelog…
It’s me! Full body hives after patch 2 and 3 when the fibrin dissolved (approx 2 weeks out), then I went into anaphylaxis on the table during patch 4 and needed an epinephrine injection during my patch. No more fibrin for me. 😭
A new study found a 0.49% incidence of hypersensitivity reactions during EBP with fibrin glue, none during 1st exposure, & with younger age, lower BMI, & inadvertent intravenous injection during the procedure increasing likelihood of reactions: https://t.co/2AMpWeqTUQ
