Joe Alper

Jun 18, 2024 | nap.nationalacademies.org | Rebecca English |Joe Alper

Chapters skim Front Matter i-xvi Summary 1-12 1 Introduction and Study Context 13-34 2 Living with ALS Today 35-52 3 Making ALS Livable in the Near Term 53-76 4 Creating a Sustainable and Accessible ALS Clinical Care and Research System 77-110 5 Advancing ALS Research and Accelerating Therapeutic Development 111-138 6 Preventing ALS 139-150 Appendix A: Public Session Agendas 151-160 Appendix B: Biographical Sketches of Committee Members and Staff 161-170 Appendix C: Disclosure of Unavoidable...

May 15, 2024 | nap.nationalacademies.org | Joe Alper

Chapters skim Front Matter i-xx WORKSHOP OVERVIEW 1-11 INTEGRATING LIVED EXPERIENCE INTO SERIOUS ILLNESS CARE RESEARCH 12-20 EXPLORING THE STATE OF THE SCIENCE OF SERIOUS ILLNESS CARE RESEARCH: PAST, CURRENT, AND FUTURE 21-33 IMPROVING EVIDENCE GENERATION TO ADDRESS GAPS IN SERIOUS ILLNESS CARE RESEARCH: RESEARCH METHODOLOGY/STUDY DESIGN 34-55 IMPROVING EVIDENCE GENERATION FOR SERIOUS ILLNESS CARE RESEARCH: OUTCOME MEASURES AND DATA CAPTURE 56-72 INTEGRATING HEALTH EQUITY INTO SERIOUS ILLNESS...

Jan 18, 2024 | nap.nationalacademies.org | Francis K. Amankwah |Joe Alper |Sharyl J. Nass

A National Academies committee hosted a public workshop series in 2023.