Karen S. Marder

Oct 25, 2024 | nature.com | Tae-Hwi Schwantes-An |Ignacio F. Mata |James Beck |Anna Naito |Karen S. Marder |Roy N Alcalay | +6 more

Genetic testing for Parkinson’s disease (PD) is infrequently performed due to perceptions of low utility. We investigated the personal utility in PD GENEration and how results lead to enrollment in additional research studies. Participants (n = 972) underwent genetic testing, results disclosure, genetic counseling, and completed a survey examining the perceived personal utility of their results and interest in participating in additional studies. Most participants found their genetic test results useful, including satisfying curiosity (81%), feeling good about helping the medical community (80%), and having information to share with family (77%). There were no significant differences in responses based on result type. Forty-five percent of participants expressed interest in participating in research studies; whereas 16% of participants confirmed enrollment. Our results suggest that participants find personal utility in genetic testing regardless of results. Although participants may be interested in enrolling in additional research, they may need support and resources.

Apr 15, 2024 | yahoo.com | Karen S. Marder |Randi Weingarten

As teachers, we try to impart to young people that life often defies binary delineations. As Jews, we can be heartsick and horrified over the Oct. 7 attack on Israel by Hamas, the death, suffering and capture of hundreds of Israelis and now, as the war drags on, thousands of innocent Palestinians. We can demand the release of Israeli hostages and fight for humanitarian aid for Gazans now starving. We can fight against hate and for free expression.