Larry Luxner
Freelance Journalist and Photographer at Freelance
Host at Rare Care Podcast
Veteran journalist covers global politics & rare diseases, with focus on Mideast, Asia, Africa & Latin America. Loves hiking, saltwater fish and license plates.
Articles
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1 week ago |
timesofisrael.com | Sharon Wrobel |Steven Scheer |Larry Luxner |Jessica Steinberg
© 2025 The Times of Israel , All Rights Reserved
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2 weeks ago |
rarediseaseadvisor.com | Larry Luxner
SAN ANTONIO, Texas—Brenda Wong, MD, who’s been treating boys and young men with Duchenne muscular dystrophy (DMD) for 25 years, will bring her expertise to CureDuchenne, filling the nonprofit group’s new chief medical advisor role. CureDuchenne’s announcement of the position, which takes effect January 5, 2026, coincides with its Futures 2025 conference, which is being attended here by more than 700 people.
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2 weeks ago |
stljewishlight.org | Larry Luxner
In 1974, Pamela Nadler Emmerich — then a teenager from Montreal — arrived in Jerusalem for her freshman year at Hebrew University. Not knowing what to expect, she signed up for a course on Jewish intellectualism, “Philosophical Implications of Rabbinic Thought,” taught by Montreal native Rabbi David Hartman. “After class, I went up and told the professor that I had grown up in an Orthodox Jewish community but wasn’t sure if I believed in God,” she recalled.
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2 weeks ago |
rarediseaseadvisor.com | Larry Luxner
In May 2020, barely 2 months after the World Health Organization had declared COVID-19 a pandemic, Molly McManus of Duluth, Minnesota, went into respiratory failure. She had been sick since January of that year, and because doctors suspected she might have coronavirus, they tested her no less than 40 times for the disease. “My husband dropped me off at the hospital, and he didn’t see me for 10 days,” she recalled.
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3 weeks ago |
rarediseaseadvisor.com | Larry Luxner
THE HAGUE, Netherlands—Four women from four European countries shared what it’s like to live with myasthenia gravis (MG), during a session at Myasthenia Gravis Foundation of America (MGFA)’s first-ever gathering outside the US. The MGFA 15th International Conference on Myasthenia and Related Disorders attracted 650 clinicians, researchers and patient advocates from 44 countries to this Dutch city.
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My feature in today's @RareDisease_Adv. #SOARAct02. #WorldOxygenDay @PHAssociation @PFFORG #CHEST2024 @LungAssociation @PennMedPH @PFWarrior #COPD @TheCQRC @ahajaricase @RareDiseases @aarc_tweets @atscommunity @COPDFoundation @accpchest https://t.co/TYQboiztFQ
My story on @RareDisease groups lobbying Congress to save the #pediatricdrug voucher program before it expires. @MDAUSA @CureDuchenne @ParentProjectMD @CureSMA #NORD @CureFA_org @US_HAEA @PWSAUSA @RareDisease_Adv @LEMSFamily @CF_Foundation @hemophiliafed https://t.co/SMGKb2X8IQ
My story in @RareDisease_Adv on #MIT math whiz Ben Lou, who maintains a perfect 5.0 GPA despite his #spinalmuscularatrophy, and his caregiver mom Jenny Huang. @mdaorg @RareDiseases @SMA_UK_ @huang_huihua #SMA #RareDisease @CureSMA https://t.co/FRsGGGOFXf