Larry Luxner

Tel Aviv

Freelance Journalist and Photographer at Freelance

Veteran journalist covers global politics & rare diseases, with focus on Mideast, Asia, Africa & Latin America. Loves hiking, saltwater fish and license plates.

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Articles

Patients at MGFA Conference Offer Insights on Living With Myasthenia Gravis

2 days ago | rarediseaseadvisor.com | Larry Luxner

THE HAGUE, Netherlands—Four women from four European countries shared what it’s like to live with myasthenia gravis (MG), during a session at Myasthenia Gravis Foundation of America (MGFA)’s first-ever gathering outside the US. The MGFA 15th International Conference on Myasthenia and Related Disorders attracted 650 clinicians, researchers and patient advocates from 44 countries to this Dutch city.
A Kansas Man's Lifelong Struggle With Limb-Girdle Muscular Dystrophy

2 days ago | rarediseaseadvisor.com | Larry Luxner

DALLAS—In 1999, Donavon Decker—a 37-year-old air traffic controller from Huron, South Dakota—made medical history when he became the world’s first recipient of gene therapy for a neuromuscular disease. Decker, now 62 and living just outside Wichita, Kansas, says the groundbreaking procedure ultimately changed the trajectory for a whole range of other diseases.
Libyan-American Forum to spark US investment in critical projects

6 days ago | washdiplomat.com | Larry Luxner

Nearly 14 years after the overthrow and killing of Libya’s longtime strongman, Col. Muammar Qaddafi, the country remains mired in economic chaos despite its vast oil wealth. Yet signs of hope are beginning to emerge. Last month, some 250 business executives representing 90 companies gathered at Washington’s Ritz-Carlton Hotel for the Libyan-American Forum for Development and Reconstruction.
Suriname's Albert Ramdin becomes head of OAS as multiple crises loom

6 days ago | washdiplomat.com | Larry Luxner

Dutch-speaking Suriname is the smallest independent nation in South America. Rainforests cover 94% of its area, and its biodiversity is exceeded only by its ethnic richness—an unusual mix of East Indian, European, Javanese, Maroon, Creole, Chinese and Amerindian. And now, Suriname has a new claim to fame: its foreign minister, 67-year-old Albert Ramchand Ramdin, has been chosen secretary-general of the Organization of American States (OAS).
Regional Pockets of HAE Persist Due to Founder Effect, Affecting Generations of Families

1 week ago | rarediseaseadvisor.com | Larry Luxner

For many years, Nancy Willis, now 53, was a second-grade teacher in Oneonta, Alabama. But recently, Willis was forced to give up the job she loved, after the rare disease that had plagued her since childhood—hereditary angioedema (HAE)—finally got in the way. The fact that Willis has HAE was no surprise. She was tested for the disease at her local fire department at 2 years old because it was known to run in her family. Willis had her first HAE attack at 11 years old.
An Interview With Chris Lewis, Son of Comedian Jerry Lewis

1 week ago | rarediseaseadvisor.com | Larry Luxner

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy. Read the full story on DMD Companion, a sister site of Rare Disease Advisor : Chris Lewis, son of ‘King of Comedy’ Jerry Lewis, reflects on father’s devotion to MDA
At the 100-year mark, Hebrew University’s American friends are looking to capitalize on a unique moment

1 week ago | jlifeoc.com | Larry Luxner

In 1974, Pamela Nadler Emmerich — then a teenager from Montreal — arrived in Jerusalem for her freshman year at Hebrew University. Not knowing what to expect, she signed up for a course on Jewish intellectualism, “Philosophical Implications of Rabbinic Thought,” taught by Montreal native Rabbi David Hartman. “After class, I went up and told the professor that I had grown up in an Orthodox Jewish community but wasn’t sure if I believed in God,” she recalled.
Pro-Nazi singer sells out Zagreb arena as Croatia’s collaborationist past sheds its taboo

1 week ago | sun-sentinel.com | Larry Luxner

Among the Jews who gathered in nine cities and towns in this former Yugoslav republic to commemorate Yom HaShoah — Holocaust Remembrance Day — was Darko Fischer, one of about 140 remaining survivors of a wartime regime whose fascist leaders were considered even more brutal than the Nazis. “It was worse than Auschwitz. Here they had crematoria and massive killing, but also physical and psychological torture.
An Interview With Lisa Butler, CEO of the GBS/CIDP Foundation

1 week ago | rarediseaseadvisor.com | Larry Luxner

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS/CIDP Foundation, on what her organization does for patients with chronic inflammatory demyelinating polyneuropathy (CIDP). Read the full story here: GBS/CIDP Foundation Helps Promote Awareness of Rare Debilitating Neuropathy See the full Rare Care podcast library.
As Croatia's fascist past sheds taboo, some local Jews fear for their future

1 week ago | timesofisrael.com | Larry Luxner

ZAGREB, Croatia (JTA) — Among the Jews who gathered in nine cities and towns in this former Yugoslav republic last week to commemorate Yom HaShoah — Holocaust Remembrance Day — was Darko Fischer, one of about 140 remaining survivors of a wartime regime whose fascist leaders were considered even more brutal than the Nazis. “It was worse than Auschwitz. Here they had crematoria and massive killing, but also physical and psychological torture.