
Articles
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1 week ago |
theguardian.com | Melody Schreiber
Autism researchers and advocates are pushing back against the creation of an autism database – meant to track the health of autistic people in a major research study – and pointing to the ways such databases could be misused. While the US Department of Health and Human Services (HHS) denies it’s a registry, the agency did confirm a sweeping database of autistic people will power a $50m study on autism.
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1 week ago |
theguardian.com | Melody Schreiber
When Robert F Kennedy Jr announced a major project to track the health of people with autism, autistic people and their friends and families reacted with shock and anger. They also expressed dismay and concern over the US health secretary’s incorrect and “weird” approach to autism spectrum disorder.
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2 weeks ago |
magazine.publichealth.jhu.edu | Melody Schreiber
Frank Squibb opens the passenger-side door of the cherry-red SUV and eases out. His girlfriend of 18 years brings over his walker, and a staff member helps Frank alight. Nowadays, his girlfriend or his oldest daughter drives Squibb, 85, wherever he needs to go. When he first signed up for this, at age 50, he could maneuver easily; but the decades and diagnoses have slowed him down.
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3 weeks ago |
theguardian.com | Melody Schreiber
Autism experts and autistic people are pushing back on Robert F Kennedy’s “terrible” approach to autism as the health secretary plans more expansive monitoring of autistic people’s health records and proposes cuts to disability services. A huge study on autism proposed by Kennedy will draw upon private medical records from federal and commercial databases, and a new health registry will track autistic Americans, CBS News reported on Monday.
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1 month ago |
theguardian.com | Melody Schreiber
As tuberculosis outbreaks pick up speed in the US and abroad amid deep cuts in funding for local, state and international public health programs, a resurgence of the deadliest infectious disease – including drug-resistant tuberculosis – could be on the horizon. Increasing funding for public health responses could end tuberculosis (TB) altogether, says James Brookes, an IT specialist from Idaho, who told this to his representatives in Congress on Wednesday.
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