Sotirios Bristogiannis

May 16, 2023 | onlinelibrary.wiley.com | Jahanzaib Khwaja |Yadanar Lwin |Sotirios Bristogiannis |Ashutosh Wechelaker

Summary Systemic AL amyloidosis is an incurable condition with various presentations and may cause multiple complications related to organ involvement. As survival has improved, disease and therapy-related quality of life (QoL) is becoming an increasingly important treatment endpoint. We review the literature summarising the utilised QoL questionnaires (QLQs) and assess their validity according to COSMIN (Consensus-based Standards for the Selection of Health Measurement Instruments) standards.