Sujatha Gurunathan

Feb 12, 2024 | mdaquest.org | Emily Blume |Sujatha Gurunathan

Almost every ordinary activity — eating a meal, taking a bath or shower, using the toilet, using a computer, driving a car — can be affected by weakening muscles caused by a neuromuscular disease. Most of these activities can be maintained — often in a modified form — with the help of physical therapy (PT) and occupational therapy (OT).

Nov 20, 2023 | mdaquest.org | Matt Alderton |Sujatha Gurunathan |Jason Henninger

Many people worry that if a genetic test reveals they have amyotrophic lateral sclerosis (ALS), muscular dystrophy, or another genetic disease in their DNA, they could be subject to discrimination. While our country has medical privacy and antidiscrimination laws to prevent that, some types of insurance are not covered by those laws. Here’s what you need to know about insurance when considering genetic testing.

Sep 1, 2023 | mdaquest.org | Paul Melmeyer |Myrna Traylor |Sujatha Gurunathan |Mark Fisher

It is well known that the earlier a disease is diagnosed and treated, the better the outcomes. Consequently, for neuromuscular diseases, where damage to the muscle, neurons, or sometimes both, causes irreversible (at least at present) damage, an earlier diagnosis is critical.