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3 weeks ago | 
parkinsonseurope.org | Verity Willcocks |Christy McGhee
Wherever you live, join in with the rest of the Parkinson’s community and raise awareness for World Parkinson’s Day 2025 by taking part in one of the special events on or around 11 April. Find out what is happening near you by consulting our handy interactive Parkinson’s map or explore the World Parkinson’s Day 2025 events highlights around the UK, Europe and the world below.
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3 weeks ago | 
parkinsonseurope.org | Verity Willcocks |Christy McGhee
We chat to Jessie Duncan, new Outreach and Engagement Manager at Parkinson’s Europe, to find out about the hard work she is doing for our organisation. As Outreach and Engagement Manager at Parkinson’s Europe, what does your job involve? The role is very much about engaging with and building on the variety of stakeholders we work with. There’s quite a diverse range of members.
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1 month ago | 
parkinsonseurope.org | Verity Willcocks |Christy McGhee
Parkinson’s Europe member association Parkinson Italia (ONLUS) is playing a prominent supportive role in Preserving the Brain: A Call to Action. The initiative by the Prada Foundation focuses on the importance of prevention and early treatment of incurable diseases including Alzheimer’s, Huntington’s, ALS, and Multiple Sclerosis, as well as Parkinson’s.
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1 month ago | 
parkinsonseurope.org | Verity Willcocks
Europe and the rest of the world are facing a “pandemic” of neurological diseases, says Elena Moro, the President of the European Academy of Neurology (EAN), with the economic burden of neurological diseases in Europe alone estimated at €1,7 trillion in 2020.
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1 month ago | 
parkinsonseurope.org | Verity Willcocks
Over the six years that German neurologist Dr Ines Debove and filmmaker Bettina Rotzetter have been making films featuring people with Parkinson’s, they have not shied away from difficult topics. Their sixth and most recent film, Beyond Impulse, released in December 2024, focuses on impulse control disorders.
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2 months ago | 
parkinsonseurope.org | Verity Willcocks
It may be small in size, but its impact is immense: the Berlin-based YUVEDO Foundation has rapidly become a driving force in the fight against Parkinson’s. Since its establishment in 2019 by Dr. Jörg Karenfort and Jens Greve – both diagnosed with the disease in 2013 – the foundation has built a reputation for combining science, advocacy and cultural engagement in its pursuit of a cure. Dr. Karenfort, a leading business lawyer, is no stranger to tackling complex challenges.
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2 months ago | 
parkinsonseurope.org | Verity Willcocks
“When I was diagnosed with Parkinson’s disease, I found that there was a great lack of knowledge about it,” says 53-year-old Alberto Amil Lago, who lives in A Coruña in northwest Spain. He was also, understandably, concerned that there was no cure. Alberto was 38 when he was diagnosed with Early Onset Parkinson’s in 2011.
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Jan 15, 2025 | 
parkinsonseurope.org | Verity Willcocks
The charity Parkinson’s UK has this week announced a new “community-first” strategy, as well as a new logo and refreshed brand identity to reflect this. Explaining its fresh approach, a statement from the charity said: “This means keeping those living with the condition at the heart of its work, as well as those giving them care and support.”The new strategy is the outcome of a consultation with more than a thousand of the 153,000 people living with Parkinson’s in the UK.
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Nov 15, 2024 | 
parkinsonseurope.org | Verity Willcocks
Desde que se comenzó a aplicar la estimulación cerebral profunda (ECP) como tratamiento avanzado del párkinson a finales de los 80, se han producido muchos cambios. Cuando el Doctor Lennart Stieglitz, neurocirujano y médico jefe del servicio en el Hospital Universitario de Zúrich en Suiza, comenzó su carrera hace 19 años, se percibía de otra manera. «La terapia con ECP se utilizaba como último recurso en pacientes de edad avanzada o en fases muy avanzadas de párkinson», comenta.
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Nov 5, 2024 | 
parkinsonseurope.org | Verity Willcocks
A new e-book, What Parkinson’s Feels Like: a collection of illustrations inspired by descriptions written by people with Parkinson’s around the globe, has been created by Canadian artist with Parkinson’s Barbara Salsberg Mathews to raise awareness and share with others what it’s like to live with the condition. Free to download, the e-book is the result of a question Barbara posted to her social media followers with Parkinson’s earlier this year: what does Parkinson’s feel like for you?
