Mark Harrington

1 week ago | myastheniagravisnews.com | Mark Harrington

Living with myasthenia gravis (MG) has changed important parts of my life. It has taken things from me that I thought were permanent, such as my physical strength. My previous ability to plan my days with confidence no longer exists. Most difficult of all, MG has made me distrust our healthcare system here in the U.S.However, a new me has arisen phoenixlike from the ashes of my pre-MG life. Upon reflection, I see the new me as a better man.

3 weeks ago | myastheniagravisnews.com | Mark Harrington

Living with a rare disease is difficult enough, but in the United States, patients fight not only their illness, but also the healthcare system that’s supposed to help them. I was diagnosed with myasthenia gravis (MG) five years ago this month. Managing it requires specialized care, regular treatment, and access to breakthrough medications.

2 months ago | myastheniagravisnews.com | Sarah Bendiff |Mark Harrington |Allen Francis

I recently made peace with the fact that we almost always judge the book by its cover. It’s just what humans do. We believe what we see. And having a disease that’s not always visible has been the biggest challenge of my life. I often look just tired enough to not be trusted with a full-time, high-pressure job, but not sick enough to be accepted in priority lines without getting questioned. I know I’m not alone in that, so it got me thinking: Can we control our appearance to make our lives easier?

2 months ago | myastheniagravisnews.com | Sarah Bendiff |Patricia Inacio |Mark Harrington |Andrea Lobo

By the end of each month, I always find myself asking: Where does my money go? I work as a freelancer in the digital marketing field, and I also teach courses in the same area. It’s a pretty lucrative activity these days, especially as digital work continues to expand. But somehow, this income is never enough. And the answer to my opening question is always the same: myasthenia gravis (MG). I hate feeling like I’m victimizing myself or constantly blaming MG.

2 months ago | myastheniagravisnews.com | Mark Harrington |Shawna Barnes

Grief’s companion is pain. But in that pain, we can find richness. Holding my mother’s hand as she took her last breath was incredibly painful, but also one of the finest moments of my life. I was able to be with her as she exited this world, just as she had been with me as I entered it. It was sublime.