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4 days ago | 
myastheniagravisnews.com | Mark Harrington
Living with a rare disease is difficult enough, but in the United States, patients fight not only their illness, but also the healthcare system that’s supposed to help them. I was diagnosed with myasthenia gravis (MG) five years ago this month. Managing it requires specialized care, regular treatment, and access to breakthrough medications.
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1 month ago | 
myastheniagravisnews.com | Sarah Bendiff |Mark Harrington |Allen Francis
I recently made peace with the fact that we almost always judge the book by its cover. It’s just what humans do. We believe what we see. And having a disease that’s not always visible has been the biggest challenge of my life. I often look just tired enough to not be trusted with a full-time, high-pressure job, but not sick enough to be accepted in priority lines without getting questioned. I know I’m not alone in that, so it got me thinking: Can we control our appearance to make our lives easier?
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1 month ago | 
myastheniagravisnews.com | Sarah Bendiff |Patricia Inacio |Mark Harrington |Andrea Lobo
By the end of each month, I always find myself asking: Where does my money go? I work as a freelancer in the digital marketing field, and I also teach courses in the same area. It’s a pretty lucrative activity these days, especially as digital work continues to expand. But somehow, this income is never enough. And the answer to my opening question is always the same: myasthenia gravis (MG). I hate feeling like I’m victimizing myself or constantly blaming MG.
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2 months ago | 
myastheniagravisnews.com | Mark Harrington |Shawna Barnes
Grief’s companion is pain. But in that pain, we can find richness. Holding my mother’s hand as she took her last breath was incredibly painful, but also one of the finest moments of my life. I was able to be with her as she exited this world, just as she had been with me as I entered it. It was sublime.
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2 months ago | 
myastheniagravisnews.com | Marisa Wexler |Mark Harrington |Andrea Lobo |Margarida Maia
More than 500 members of the myasthenia gravis (MG) community are expected at a conference featuring strategies for patient education, advances in science and treatment, and discussions on managing MG.
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2 months ago | 
myastheniagravisnews.com | Sarah Bendiff |Mark Harrington |Shawna Barnes |Allen Francis
I discovered my love of cooking when I was 12. While I enjoyed every part of my learning journey, my mom didn’t fully trust me in her kitchen, so I didn’t get to cook very often. I still live with her, so cooking for me is a rare occasion, which means that when she finally allows me to take over, I get a little too excited. Unfortunately, myasthenia gravis (MG) likes to remind me that things will never be as easy as they used to be.
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2 months ago | 
myastheniagravisnews.com | Mark Harrington |Sarah Bendiff
I’m not the first guy to discover that myasthenia gravis (MG) deserves membership in the select group known as invisible illnesses. Lately, I’ve been thinking about the impact that life with such an illness has on a person’s emotional health. I don’t want to end up in a dismal spot. Instead, I want to share the joy and humor I find in days made difficult by MG.
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2 months ago | 
myastheniagravisnews.com | Lindsey Shapiro |Mark Harrington |Marisa Wexler |Margarida Maia
Investigational therapy batoclimab eased disease severity for adults with generalized myasthenia gravis (gMG) in a Phase 3 trial, but the treatment’s developer said it’s not planning to seek regulatory approval of the treatment for gMG in the U.S. Immunovant, a Roivant subsidiary, is instead focused on using the findings to further advance its lead therapeutic candidate, IMVT-1402, which has a similar mechanism of action to batoclimab — both belong to a class of therapies called FcRn...
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2 months ago | 
myastheniagravisnews.com | Allen Francis |Steve Bryson |Mark Harrington |Shawna Barnes
I started traveling as a backpacker when I was 19 years old, back in the 1990s. I spent a semester studying in London in 1997. As a naive kid from the South Bronx in New York City, I found it mind-blowing to be in countries where people spoke English but had such heavy accents that I couldn’t understand them. I was also a lot more outgoing back then; I’d go out of my way to say hello to strangers and try to strike up spontaneous conversations.
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2 months ago | 
myastheniagravisnews.com | Mark Harrington
In the years since my myasthenia gravis (MG) diagnosis, I’ve learned to live with certain remarks that, though well-intended, can be hurtful. In conversations with other MG patients, I’ve heard about experiences like mine. No matter what we do — buying groceries, tying our shoes, breathing — someone is bound to call us “inspirational.”Last week while I was grocery shopping, someone on social media commented, “You are so brave!” I wasn’t fighting a dragon.
