Molly Rozelle

1 month ago | epidermolysisbullosanews.com | Molly Rozelle |Patrice C. Williams |Andrea Lobo

Living with epidermolysis bullosa (EB) is a daily lesson in resilience. One challenge that doesn’t get enough airtime: our teeth. If you have EB, or care for someone who does, you’ve probably noticed that dental problems come with their own special brand of chaos. I learned this the hard way: by avoiding the dentist for a decade, only to face a marathon of crowns, fillings, and pain that I’m still working through.

2 months ago | epidermolysisbullosanews.com | Molly Rozelle |Lindsey Shapiro |Patrice C. Williams |Lena Riedl

I’m currently working on accepting my physical imperfections. At this point in my life, motherhood and epidermolysis bullosa (EB) have been the greatest contributors to insecurities about my appearance. With motherhood, my body has transformed into various shapes and sizes, while EB has left me with scarring and nail dystrophy.

Jan 20, 2025 | epidermolysisbullosanews.com | Molly Rozelle |Patrice C. Williams |Lindsey Shapiro |Steve Bryson

Have any of you ever had to share a “fun fact” about yourself following the awkward icebreaker prompt? I’ll go first this time. I don’t have toenails. Loss of toenails is one of my most loathed physical symptoms of epidermolysis bullosa (EB). This anatomical difference has caused me a lot of grief, insecurity, and stress. I’ve spent a significant amount of time during my teen and adult years trying to fix this problem.

Dec 10, 2024 | epidermolysisbullosanews.com | Margarida Maia |Andrea Lobo |Lindsey Shapiro |Molly Rozelle

I was diagnosed with epidermolysis bullosa simplex (EBS) of the Köbner type (now simply known as generalized EBS) when I was just 18 months old. Epidermolysis bullosa (EB) is a rare genetic disease that causes extremely fragile skin that blisters easily and heals slowly. I don’t remember being diagnosed, as I was just a baby when my mom first took me to the dermatologist.

Dec 10, 2024 | epidermolysisbullosanews.com | Molly Rozelle

I was diagnosed with epidermolysis bullosa simplex (EBS) of the Köbner type (now simply known as generalized EBS) when I was just 18 months old. Epidermolysis bullosa (EB) is a rare genetic disease that causes extremely fragile skin that blisters easily and heals slowly. I don’t remember being…