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1 month ago | 
cysticfibrosisnewstoday.com | Margarida Maia |William Ryan |Andrea Lobo |Patricia Inacio
In people with cystic fibrosis (CF) — particularly those with pancreatic insufficiency, which affects digestion — constipation typically led to longer hospital stays and higher healthcare costs, a study found. “Further work is needed to determine management strategies for constipation in hospitalized [people with CF], which may include early identification and treatment,” the researchers, all with a university medical school or hospital in the U.S., wrote.
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1 month ago | 
cysticfibrosisnewstoday.com | Brad Dell |Lara Govendo |William Ryan |Jennifer Bleecher
As a child I was a kicker, the type no nurse wants to be near when wielding needles and throat swabs. Eventually I’d relax my shrieking when Mom or Dad held my hand and called me brave. The nurses were then more warmly received. To be safe, they came bearing diplomatic lollipops, stickers, and another “You’re so brave.”There comes a time when the chronically ill child learns that such rewards are designed to shut them up and soften the next meltdown.
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1 month ago | 
cysticfibrosisnewstoday.com | William Ryan |Steve Bryson |Margarida Maia |Jennifer Chamberlain
I can still envision it: The top half of the wall was painted a shade of beige, while the bottom half was covered in blue wallpaper with white stripes. That’s how I remember the room where, at some point during my childhood medical appointments, I’d step into a clear box that had a mouthpiece connected to a tube. The tube went through a small hole in the box and connected to a computer, which measured my lung health as part of a pulmonary function test (PFT).
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1 month ago | 
cysticfibrosisnewstoday.com | Jennifer Bleecher |Steve Bryson |Patricia Inacio |William Ryan
The power of water is underrated. If you Google it, you’ll see you can delve into multiple aspects of water’s properties, including how it supports thermal energy, hydropower, transportation, and anti-erosion efforts. It’s a (because of its molecular structure), it’s often symbolic (as in the Bible), and it offers spiritual gifts as well. On average, the . Staying hydrated is important for health, and for those of us living with cystic fibrosis (CF), it’s particularly vital.
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2 months ago | 
cysticfibrosisnewstoday.com | Jennifer Bleecher |Andrea Lobo |Katherine Poinsatte |William Ryan
Is it just me, or did January feel like an entire year all on its own? From drastic political shifts to devastating wildfires, extra-cold temperatures to egg shortages, a surge in influenza activity to outbreaks of tuberculosis, 2025 has been exhausting so far. On top of everything, I feel a heaviness online in the cystic fibrosis (CF) community. Again, is it just me? I see many going through extremely difficult health battles and feel they need to be addressed.
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2 months ago | 
cysticfibrosisnewstoday.com | Andrea Lobo |William Ryan |Katherine Poinsatte
Oransi has donated air purifiers to help people with cystic fibrosis (CF) affected by smoke-filled air from the wildfires that flared up last month in Southern California, Claire’s Place Foundation said. The foundation’s financial assistance program provides CF patients and their families with one-time funds for air purifiers, temporary lodging, food and nutrition, on top of other supplies.
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2 months ago | 
cysticfibrosisnewstoday.com | Katherine Poinsatte |Marisa Wexler |Andrea Lobo |William Ryan
Claire’s Place Foundation, a nonprofit supporting cystic fibrosis (CF) patients and their families, has launched the LA Fire Emergency Fund to help people with CF who are affected by the wildfires that have broken out this month in southern California. This temporary financial assistance program — being run by the staff at the California-based foundation — is offering CF patients and their families one-time funds for air purifiers, temporary lodging, food and nutrition, and other supplies.
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Jan 15, 2025 | 
cysticfibrosisnewstoday.com | Bailey Anne Vincent |Patricia Inacio |Lindsey Shapiro |William Ryan
I think the “if you just” culture is hurting sick people. Have you heard sentences that start with “if you just”? They often end by oversimplifying an issue that’s likely not that simple. I’m sick of oversimplifying health. The “if you just” culture is a bit like when someone comments on a cancer patient’s post and says, “Have you tried green juice yet?” The intent is good. The hope to help is present. But when we boil down any ailment to a single, simple, and popular “solution,” we fall flat.
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Jan 9, 2025 | 
cysticfibrosisnewstoday.com | William Ryan |Steve Bryson |Margarida Maia |Lindsey Shapiro
As a proud son of New Jersey who’s married to a woman who’s half Italian, I’ve found that fresh mozzarella is a key to happiness in life. I’ve never had a bad day when I’m eating said cheese. I could give you recommendations for the best mozzarella in northern New Jersey if you’re ever looking to visit. It’s a breath of fresh air. Speaking of which:On Dec.
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Jan 7, 2025 | 
cysticfibrosisnewstoday.com | William Ryan |Margarida Maia |Steve Bryson |Marisa Wexler
Last updated Jan. 9, 2025, by Marisa Wexler, MS Fact-checked by Jose Lopes, PhDWhat is Alyftrek for cystic fibrosis? Alyftrek (vanzacaftor/tezacaftor/deutivacaftor) is a next-generation, triple-combination CFTR modulator therapy approved for certain cystic fibrosis (CF) patients ages 6 and older.
