CreakyJoints

CreakyJoints is an online community dedicated to millions of people with arthritis and their caregivers around the globe. It offers education, support, advocacy, and research focused on patient needs. All of our programs and services are completely free.

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Articles

How to Prepare for Lupus Clinical Trials

Dec 19, 2024 | creakyjoints.org | Kelsey Kloss

Participating in a lupus clinical trial can be a valuable option if you’re living with this chronic autoimmune disease. These trials often provide access to potential new treatments that aren’t yet widely available. However, it’s understandable to have concerns, as clinical trials are sometimes surrounded by misconceptions, myths, and uncertainties. This is especially true since information on new treatments can be limited, particularly for groups like BIPOC patients.
Finding Emotional and Practical Support During Lupus Clinical Trial

Dec 19, 2024 | creakyjoints.org | Kelsey Kloss

Participating in a lupus clinical trial may be helpful if you have exhausted other treatment options or simply want access to study medications. It can also be rewarding if you want to contribute to the body of research available for the lupus community. That said, there’s understandably quite a bit to consider when you’re preparing for a lupus clinical trial, including what your support system will look like.
Managing Lupus Symptoms During a Clinical Trial

Dec 19, 2024 | creakyjoints.org | Kelsey Kloss

Joining a lupus clinical trial is a big decision, and one of many factors to consider is how it could impact your lupus symptoms. Living with lupus often involves trial and error with treatments and managing unpredictable symptoms. If you enter a clinical trial feeling informed, prepared, and empowered, it might offer a unique opportunity to learn more about your individual experience with lupus.
Special ACR Edition

Dec 9, 2024 | creakyjoints.org | Shelley Fritz

The 2024 American College of Rheumatology (ACR) Convergence highlighted exciting new research that could transform health care. From innovative therapies for lupus treatment to technologies that are reshaping rheumatoid arthritis (RA) care, we’re spotlighting the research that matters most to you.
Neuroimmune Modulation

Nov 25, 2024 | creakyjoints.org | Susan Jara

At the 2024 American College of Rheumatology (ACR) Convergence, patients, clinicians, and researchers came together to discuss an innovative treatment for rheumatoid arthritis (RA): neuroimmune modulation. This therapy is a first-of-its-kind treatment for people living with moderate-to-severe RA who haven’t found relief from at least one biologic or targeted medication or can’t tolerate them.
Healing Together: The Role of BIPOC-Only Chronic Illness Spaces

Nov 14, 2024 | creakyjoints.org | Shelley Fritz

“This started as nothing — just an idea,” Sarah Shaw recalls. “But we knew the community needed it.”What began as an idea is now ChronicHue, a global online community supporting BIPOC individuals with rheumatic and chronic illnesses. Founded by Sarah, GHLF’s Associate Director of Diversity, Equity, and Inclusion, and JP Summers, Senior Patient Advocate and Community Outreach Manager, ChronicHue addresses the unique challenges BIPOC patients face in traditional support spaces.
How Systematic Research Helped One Patient Manage RA

Nov 14, 2024 | creakyjoints.org | Shelley Fritz

As a Patient-Centered Engagement and Insights Manager at the Global Healthy Living Foundation (GHLF) and someone living with rheumatoid arthritis (RA), fibromyalgia, and osteoarthritis, I have always found myself seeking reliable answers about my health. Over the years, I’ve juggled managing my conditions while advocating for others living with similar experiences.
Exploring the Benefits of Sauna Therapy for Rheumatoid Arthritis

Nov 14, 2024 | creakyjoints.org | Shelley Fritz

At this year’s American College of Rheumatology (ACR) Convergence, Eileen Davidson shared her inspiring patient perspective on how sauna therapy has become a cornerstone of her self-management strategy for rheumatoid arthritis (RA). When Eileen Davidson was diagnosed with rheumatoid arthritis (RA) in 2015, she began a journey to find ways to manage her symptoms and improve her quality of life. Over the years, she’s explored various treatments, therapies, and lifestyle adjustments.
How "My Knee Notes" Can Help You Manage Knee Osteoarthritis

Nov 14, 2024 | creakyjoints.org | Shelley Fritz

Living with chronic knee pain is a challenging and often exhausting journey — just ask Tien Sydnor-Campbell. For over 40 years, she has contended with knee pain that began in sixth grade, initially brushed off as “growing pains.” Over time, her pain worsened, her mobility declined, and she struggled to convey the full impact of her pain to her doctors. Without a way to track her symptoms, Tien often felt overwhelmed in managing her health.
Patient-Friendly News You Can Use: October

Oct 29, 2024 | creakyjoints.org | Shelley Fritz

This month, we explore the challenges women face in getting their pain taken seriously in the emergency room (ER), a new AI tool for young people with knee osteoarthritis, and how mindfulness can match medication for anxiety relief. Plus, learn about gaps in psoriatic arthritis care, heart health tips after COVID, and what to consider if you’re exploring medical cannabis for arthritis symptoms.