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Aug 19, 2024 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Paris Dancy |vijaya iyer
I spend a lot of time talking with other people who are chronically ill. There’s something special about having a friend who truly understands everything I’ve been through with Cushing’s disease.
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May 27, 2024 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Jessica Bracy |Paris Dancy
Since my diagnosis with Cushing’s disease in 2020, I’ve felt more alone than ever. My friends and family are very loving, and they want to understand, but I’ve needed to connect with people who have been through the same health challenges. Finding others who are chronically ill has been imperative for my mental health. I’ve met incredible people through my work at BioNews, the publisher of this website, and on social media.
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May 10, 2024 | 
cushingsdiseasenews.com | Margarida Maia |Brandy Moody |Catarina Louro-Matos |Steve Bryson
The presence of somatic mutations in the USP8 gene, found in up to half of people with Cushing’s disease, appears to have no impact on how well patients fare after undergoing surgery to remove a disease-causing pituitary tumor, a study has found.
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Jul 20, 2023 | 
cushingsdiseasenews.com | Jessica Bracy |Catarina Louro-Matos |Marisa Wexler |Noura Costany
Hello! I hope this column finds you doing well. My name is Jessica, and I was diagnosed with Cushing’s disease at the age of 30. A year after that, I had transsphenoidal pituitary resection surgery to remove a 3 mm pituitary tumor. Having Cushing’s disease is not only inconvenient — which is a huge understatement — but it is also incredibly challenging to be diagnosed and properly treated. Because of this, I’d like to share some of the knowledge and information I picked up along the way.
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Jul 3, 2023 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Andrea Lobo |Jessica Bracy
I’m out in public, trying to take public transportation. There aren’t any accessible stations nearby, so I decide to brave the stairs with my cane. As time goes by, my legs begin to ache, my knees start to twist, and my ankles feel like they’re giving out. By the time I’ve gotten down the first flight of stairs, my body is shaking. Not only is it frustrating that I seemingly have to beg for accessible stations, but the discomfort only amplifies as people stop and stare.
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Jun 19, 2023 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Marisa Wexler |Jessica Bracy
I am struggling right now due to a rough Cushing’s disease flare-up. That’s been clear in some of my recent columns and to those who are close to me. While I hope for better days, it’s not easy. I should’ve seen the signs as soon as I started feeling hopeless. Usually, that’s one of the first indications that I need to cancel activities and rest. But I didn’t catch it this time. Instead, the hopelessness overtook me like a wave, pulling me under again and again.
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May 25, 2023 | 
cushingsdiseasenews.com | Jessica Bracy |Catarina Louro-Matos |Margarida Maia |Noura Costany
Six months have passed since I had transsphenoidal pituitary surgery to remove a 3 mm tumor on my pituitary gland. Since then, I have taken time to reflect on things I’ve learned. Before surgery, I had many expectations about how my Cushing’s disease symptoms might improve afterward. These expectations were influenced by the success stories I learned about in my support group, research I did about what to expect, and my own hopes for what symptom improvement might look like.
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May 15, 2023 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Lindsey Shapiro |Jessica Bracy
I’ve often thought that my chronic illness is a burden on me and everyone else around me. Because of this mindset, I’ve found myself apologizing for it. When my medicine caused me to vomit in front of my in-laws, I was embarrassed. When I hit a low point and had to take three days off work, I felt like I was letting my team down.
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May 10, 2023 | 
cushingsdiseasenews.com | Jessica Bracy |Catarina Louro-Matos |Marisa Wexler |Noura Costany
The internet has proven to be one of the most fundamental tools I have utilized while navigating my Cushing’s disease journey. My body felt off, and I didn’t understand why. In the most traditional fashion, I presented my symptoms to many different doctors, who all brushed me off. This made me realize that I had to figure out what was wrong on my own. No, I do not hold a medical degree.
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Apr 18, 2023 | 
cushingsdiseasenews.com | Jessica Bracy |Catarina Louro-Matos |Andrea Lobo |Noura Costany
I’ve been a social worker since 2018. Throughout this journey, I’ve found that working with a therapist was imperative for me. The social work field is both turbulent and relentless at times, and therapy helped me prevent burnout in both my personal and professional life. Yet I don’t think I realized just how helpful therapy would be until I got sick.
