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1 month ago | 
cushingsdiseasenews.com | Andrea Lobo |Paris Dancy |Noura Costany |Mary Chapman
People with Cushing’s disease who have more education are also more likely to have better patient outcomes — including longer survival — than those with lower educational levels, a study in Sweden found. According to the study, which followed individuals with Cushing’s for as long as 20 years before and after diagnosis, nearly all patients experience a decline in employment rate and income, and an increasing rate of disability pension, over time.
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Oct 28, 2024 | 
cushingsdiseasenews.com | Noura Costany |Paris Dancy |Brandy Moody
Getting diagnosed with Cushing’s disease in 2020 changed my life — and my career path. I’d been out of college for only a year when I became sick and had to quit my job. I could barely get out of bed, let alone work or study. It was impossible to push through my symptoms. I studied acting in college and participated in some great projects. But memorizing lines became overwhelming due to the brain fog that accompanies Cushing’s disease.
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Aug 26, 2024 | 
cushingsdiseasenews.com | Noura Costany |Brandy Moody |Marisa Wexler |Paris Dancy
I recently had what I call a “day of doctors.” I had multiple specialist appointments coming up, so I planned them all for the same day. First, I met with a hematologist to figure out why my white blood cell count has been so high. The doctor offered several possibilities, including inflammation and low iron. Then, of course, I did a ton of blood work. It took only a few hours to get my labs back.
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Aug 19, 2024 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Paris Dancy |vijaya iyer
I spend a lot of time talking with other people who are chronically ill. There’s something special about having a friend who truly understands everything I’ve been through with Cushing’s disease.
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Aug 7, 2024 | 
cushingsdiseasenews.com | Margarida Maia |Steve Bryson |Paris Dancy |Andrea Lobo
A 76-year-old man in Greece developed ectopic Cushing’s syndrome due to an advanced prostate cancer that started producing the adrenocorticotropic hormone (ACTH), leading to unusual symptoms such as muscle weakness, slowed thinking, and low potassium levels. Despite immediate treatment, his clinical condition worsened, and he eventually died. It’s a case that calls attention to the need for timely diagnosis and intervention to avoid life-threatening complications, researchers say.
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Jul 10, 2024 | 
cushingsdiseasenews.com | Marisa Wexler |Noura Costany |Patricia Inacio |Paris Dancy
Analyzing the gene activity profile of blood cells may help detect Cushing’s syndrome and could be useful in assessing its severity, a recent study reports. The study, “Whole blood transcriptomic signature of Cushing’s syndrome,” was published in the European Journal of Endocrinology. Cushing’s syndrome is an umbrella term for disorders characterized by excessively high levels of the stress hormone cortisol.
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Jul 8, 2024 | 
cushingsdiseasenews.com | Noura Costany |Paris Dancy |Margarida Maia |Patricia Inacio
It took me over two years to receive my Cushing’s disease diagnosis, mostly because my doctors weren’t well-versed in Cushing’s and didn’t know what to look for. I know that so many in the Cushing’s community have experienced that same sort of pain: We go to a doctor hoping we’ll finally be taken seriously, only to be dismissed and told that nothing is wrong with us. Medical gaslighting is when a medical professional invalidates or dismisses your concerns.
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Jun 12, 2024 | 
cushingsdiseasenews.com | Margarida Maia |Paris Dancy |Brandy Moody |Marisa Wexler
Sparrow Pharmaceuticals’ oral small molecule SPI-62, now being called clofutriben, can lower the levels of free cortisol in the urine of people with Cushing’s syndrome caused by a tumor outside the adrenal glands, including those with Cushing’s disease.
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May 27, 2024 | 
cushingsdiseasenews.com | Noura Costany |Catarina Louro-Matos |Jessica Bracy |Paris Dancy
Since my diagnosis with Cushing’s disease in 2020, I’ve felt more alone than ever. My friends and family are very loving, and they want to understand, but I’ve needed to connect with people who have been through the same health challenges. Finding others who are chronically ill has been imperative for my mental health. I’ve met incredible people through my work at BioNews, the publisher of this website, and on social media.
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Feb 5, 2024 | 
cushingsdiseasenews.com | Noura Costany |Paris Dancy |Mary Chapman |Hawken Miller
It took me two years to get diagnosed with Cushing’s disease. I suffered as I moved from doctor to doctor, begging them to figure out what was wrong with me. I was tested for (PCOS), , thyroid issues, and cervical cancer. I had to quit my job to focus exclusively on obtaining a diagnosis. I endured countless blood tests, MRIs, and hospital visits as I visited multiple primary care physicians, gynecologists, endocrinologists, and other specialists. When I finally learned what I had, I wept.
