Kalyn N Shelton

1 week ago | porphyrianews.com | Marisa Wexler |Kalyn N Shelton |Steve Bryson |Marta C. Figueiredo

People with acute intermittent porphyria (AIP) often consume large amounts of simple sugars and fats, which may contribute to metabolic problems, such as being overweight or having high levels of bad cholesterol in their blood, a study reports. “Our study provided valuable insights into the metabolic aspects of AIP, revealing improper dietary habits that may predispose patients to additional pathologies [health problems],” the researchers wrote.

4 weeks ago | porphyrianews.com | Kalyn N Shelton |Patricia Inacio |Marisa Wexler |Andrea Lobo

Note: This column describes the author’s own experiences with etonogestrel implantation. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. My arm was laid out to the side as my then fiancé and now husband, Daniel, held my hand. “Are you ready?” my doctor asked before sticking the numbing needle in my arm. “Yes,” I replied while clenching Daniel’s hand.

1 month ago | porphyrianews.com | Kalyn N Shelton |Marisa Wexler |Patricia Inacio

I was a few weeks into a common cold, and late one evening I needed to lie down. My husband, Daniel, was already in the bed, so I made myself comfortable beside him by lying flat on my back, placing my hands on my chest and interlocking my fingers. I lay there awhile and tried getting up once Daniel made his way to our living room. However, I couldn’t move. At first, I didn’t think too much about it, but I became concerned a few minutes later when I realized that I couldn’t move my entire body.

1 month ago | porphyrianews.com | Kalyn N Shelton |Kristen Wheeden |Andrea Lobo

To whom it may concern,I, Kalyn Shelton, wish to return my body as well as my mind because of chronic fatigue, nausea, pain, anxiety, depression, and more. I received this item a little over 30 years ago and began experiencing severe issues in July 2020. Please be advised that I’ve had my mind and body examined multiple times and have been diagnosed with acute intermittent porphyria (AIP).

2 months ago | porphyrianews.com | Kristen Wheeden |Steve Bryson |Kalyn N Shelton |Andrea Lobo

When the youngest of my three sons was diagnosed with erythropoietic protoporphyria (EPP) in 2009, I was a hot mess. His gut-wrenching pain was unbearable for him, and it didn’t make sense that it stemmed from something as natural as sun exposure. I remember crumpling on the floor. I was overwhelmed by fear, uncertainty, and a sense of helplessness — but not for long. EPP is an ultrarare disease that causes severe pain upon exposure to visible light, making even everyday activities a challenge.