Marta Pineda-Moncusí

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Five ways to enhance the diversity and quality of health data - Nature Medicine

Feb 24, 2025 | nature.com | Joe Alderman |Samuel Cushworth |Alastair K Denniston |Sara Khalid |Aden Kwok |Elinor Laws | +7 more

The UK Health Data Research Alliance presents five recommendations for improving data collection for inclusive health research.
Ethnicity data resource in population-wide health records: completeness, coverage and granularity of diversity - Scientific Data

Feb 21, 2024 | nature.com | Marta Pineda-Moncusí |Antonella Delmestri |Johan H. Thygesen |Christopher Tomlinson |Ashley Akbari |Gary Collins

AbstractIntersectional social determinants including ethnicity are vital in health research. We curated a population-wide data resource of self-identified ethnicity data from over 60 million individuals in England primary care, linking it to hospital records. We assessed ethnicity data in terms of completeness, consistency, and granularity and found one in ten individuals do not have ethnicity information recorded in primary care.

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