-
2 weeks ago | 
sicklecellanemianews.com | Mary Shaniqua |Sylvia Amuta |Patricia Inacio |Dunstan Nicol-Wilson
Traveling to cold climates with sickle cell disease can be daunting. Low temperatures can trigger a crisis, causing intense pain and discomfort. None of us want that. I recently returned from a trip to chilly Switzerland, and preparing for the cold was crucial to ensuring my health stayed stable and my experience was enjoyable. With adequate, albeit 11th-hour, planning, I was able to enjoy the trip without suffering any sickle cell symptoms.
-
3 weeks ago | 
sicklecellanemianews.com | Marisa Wexler |Margarida Maia |Tito Oye |Mary Shaniqua
This year, for the first time, two teenagers in Florence, South Carolina, are going to be able to go swimming on spring break without worrying about serious complications from sickle cell disease (SCD). Ashanti and Dontrell Pickens have long wanted to swim on their school holidays, but were not able to do so: Cold water temperatures, essentially anything colder than 80 degrees, could trigger a sickle cell crisis.
-
3 weeks ago | 
sicklecellanemianews.com | Dunstan Nicol-Wilson |Steve Bryson |Mary Shaniqua |Sylvia Amuta
I recently had a severe sickle cell pain crisis that forced me to go to the hospital for stronger medication than what I had at home. For the record, it’s been three years since that happened. Up until that point, all of my crises had been manageable at home. After recovering from a crisis of this severity, I often experience amnesia about the events — as if they were so traumatic that I have to forget them to move forward.
-
4 weeks ago | 
sicklecellanemianews.com | Marisa Wexler |Sylvia Amuta |Mary Chapman |Mary Shaniqua
This month, the University of Tennessee Health Science Center College of Nursing is hosting a conference that aims to educate primary care doctors about sickle cell disease (SCD). The Sickle Cell Disease Comprehensive Management for Health Care Providers conference is being funded by a two-year, $364,502 grant from the U.S. Department of Agriculture, awarded in 2023.
-
1 month ago | 
sicklecellanemianews.com | Margarida Maia |Oluwatosin Adesoye |Mary Shaniqua |Dunstan Nicol-Wilson
People with sickle cell disease (SCD) who are hospitalized for opioid overdose have fewer serious complications than those without the condition, but face longer hospital stays, higher costs, and unique healthcare challenges that require specialized care, a study found. “A multidisciplinary approach to pain management, tailored to individual patient needs and aligned with established guidelines, is crucial for improving outcomes and reducing complications in SCD,” they wrote.
-
1 month ago | 
sicklecellanemianews.com | Oluwatosin Adesoye |Sylvia Amuta |Mary Shaniqua |Dunstan Nicol-Wilson
Recently, I’ve been reflecting on how living with sickle cell disease has affected many of my dreams, goals, and lifestyle choices. Despite the changes, I have continued to dream and pursue my aspirations successfully. The impact of sickle cell disease intensified for me during my early 20s. As a result, my journey through medical school became more stressful than anticipated, transforming it into a story of resilience, determination, and persistence.
-
1 month ago | 
sicklecellanemianews.com | Andrea Lobo |Lindsey Shapiro |Mary Shaniqua |Patricia Inacio
A scientist at Florida Atlantic University, Sarah E. Du, has been named a senior member of the U.S. National Academy of Inventors in recognition of her significant contributions to innovation and invention, including her work on diagnostic and monitoring tools for sickle cell disease (SCD). The academy’s Senior Members Program recognizes scientists who have created technologies with the potential for significant social benefits.
-
1 month ago | 
sicklecellanemianews.com | Mary Shaniqua |Lindsey Shapiro |Marisa Wexler
The date was Friday, Jan. 31, 2025. It started like any other day. As I settled down to start working, I noticed I had a lot of messages, and more came in as the day went on. Message after message, phone call after phone call alerted me about a supposed new cure for sickle cell disease. My initial reaction was to ignore the calls and messages until I was in the right headspace. People don’t mean any ill will when they share news like this with sickle cell patients like me.
-
1 month ago | 
sicklecellanemianews.com | Patricia Inacio |Lindsey Shapiro |Mary Shaniqua |Marisa Wexler
Despite advancements in medical care, pregnant women with sickle cell disease (SCD) are at a higher risk of complications and require close monitoring, a nationwide French study has found. SCD is associated with a significantly higher likelihood of maternal and fetal complications, preterm birth, and caesarean sections (C-sections), data show.
-
1 month ago | 
sicklecellanemianews.com | Mary Shaniqua |Hawken Miller |Dunstan Nicol-Wilson
In a society that’s seemingly obsessed with sex and physical intimacy, you may be surprised to hear that there aren’t many resources available for those with chronic illness and physical limitations. So let’s talk about it.
Sickle cell disease is one of many conditions that can affect physical intimacy.
