-
2 weeks ago | 
sicklecellanemianews.com | Mary Shaniqua |Sylvia Amuta |Patricia Inacio |Dunstan Nicol-Wilson
Traveling to cold climates with sickle cell disease can be daunting. Low temperatures can trigger a crisis, causing intense pain and discomfort. None of us want that. I recently returned from a trip to chilly Switzerland, and preparing for the cold was crucial to ensuring my health stayed stable and my experience was enjoyable. With adequate, albeit 11th-hour, planning, I was able to enjoy the trip without suffering any sickle cell symptoms.
-
3 weeks ago | 
sicklecellanemianews.com | Dunstan Nicol-Wilson |Steve Bryson |Mary Shaniqua |Sylvia Amuta
I recently had a severe sickle cell pain crisis that forced me to go to the hospital for stronger medication than what I had at home. For the record, it’s been three years since that happened. Up until that point, all of my crises had been manageable at home. After recovering from a crisis of this severity, I often experience amnesia about the events — as if they were so traumatic that I have to forget them to move forward.
-
4 weeks ago | 
sicklecellanemianews.com | Marisa Wexler |Sylvia Amuta |Mary Chapman |Mary Shaniqua
This month, the University of Tennessee Health Science Center College of Nursing is hosting a conference that aims to educate primary care doctors about sickle cell disease (SCD). The Sickle Cell Disease Comprehensive Management for Health Care Providers conference is being funded by a two-year, $364,502 grant from the U.S. Department of Agriculture, awarded in 2023.
-
1 month ago | 
sicklecellanemianews.com | Oluwatosin Adesoye |Sylvia Amuta |Mary Shaniqua |Dunstan Nicol-Wilson
Recently, I’ve been reflecting on how living with sickle cell disease has affected many of my dreams, goals, and lifestyle choices. Despite the changes, I have continued to dream and pursue my aspirations successfully. The impact of sickle cell disease intensified for me during my early 20s. As a result, my journey through medical school became more stressful than anticipated, transforming it into a story of resilience, determination, and persistence.
-
Jan 17, 2025 | 
sicklecellanemianews.com | Mary Shaniqua |Andrea Lobo |Sylvia Amuta |Oluwatosin Adesoye
Sickle cell disease is a constant, annoying “companion” in my life. My list of grievances about the illness is never-ending, but one of the things I find most daunting is the disease’s unpredictable nature. There’s almost no way to know when a sickle cell pain crisis will strike. Unfortunately, this results in challenges such as having a crisis in public.
-
Jan 17, 2025 | sicklecellanemianews.com | Mary Shaniqua |Andrea Lobo |Sylvia Amuta |Oluwatosin Adesoye
Sickle cell disease is a constant, annoying “companion” in my life. My list of grievances about the illness is never-ending, but one of the things I find most daunting is the disease’s unpredictable nature. There’s almost no way to know when a sickle cell pain crisis will strike. Unfortunately, this results in challenges such as having a crisis in public.
-
Jan 15, 2025 | 
sicklecellanemianews.com | Oluwatosin Adesoye |Mary Shaniqua |Steve Bryson |Sylvia Amuta
With sickle cell disease, pain is often ever-present. Many people who have this disease experience various forms of pain throughout their lifetimes. Sometimes the pain is acute, other times it’s chronic, and still others it’s acute-on-chronic (when acute pain develops into chronic pain). Pain may be caused by various complications of the disease, such as leg ulcers, , chronic pain syndrome, chronic fatigue syndrome, and many more. Unfortunately, this pain tends to worsen over time.
-
Jan 15, 2025 | sicklecellanemianews.com | Oluwatosin Adesoye |Mary Shaniqua |Steve Bryson |Sylvia Amuta
With sickle cell disease, pain is often ever-present. Many people who have this disease experience various forms of pain throughout their lifetimes. Sometimes the pain is acute, other times it’s chronic, and still others it’s acute-on-chronic (when acute pain develops into chronic pain). Pain may be caused by various complications of the disease, such as leg ulcers, , chronic pain syndrome, chronic fatigue syndrome, and many more. Unfortunately, this pain tends to worsen over time.
-
Jan 13, 2025 | 
sicklecellanemianews.com | Dunstan Nicol-Wilson |Andrea Lobo |Sylvia Amuta
I wanted to start new habits at the end of last year instead of at the beginning of 2025. Several sources told me I didn’t need to wait until the start of a new year to make changes, so, in typical push-myself fashion, I attended step aerobics classes. The first session was difficult, but I was glad to be getting some additional cardio. However, after the second session the following week, I felt a familiar sensation in my knees: A sickle cell crisis had started.
-
Jan 10, 2025 | 
sicklecellanemianews.com | Mary Shaniqua |Esteban Cerezo |Sylvia Amuta |Mary Chapman
Living with sickle cell disease comes with a heavy cost. Much of your time is spent seeking to understand your body, how the condition impacts you as a person, and then adjusting your lifestyle to maximize this knowledge. This is a never-ending process because life takes you through seasons, physically as you grow, but also emotionally and socially. All of these can affect the condition and, in turn, have an impact on your health outcomes.
