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1 month ago | 
pulmonaryfibrosisnews.com | Lindsey Shapiro |Iqra Mumal
The National Organization for Rare Disorders (NORD) is seeking participants for its survey-based study Living Rare, which aims to better understand the real-world lived experiences of people in the U.S. with rare diseases. Living Rare, the first large-scale study of its kind in the U.S., seeks to capture the changing unmet needs and challenges faced by rare disease patients over time, according to the nonprofit.
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Nov 12, 2024 | 
ankylosingspondylitisnews.com | Alexandra Fendrich |Andrea Lobo |Marta C. Figueiredo |Iqra Mumal
It’s been a while since my last column, and I apologize for that. I’ll try to unpack several of the challenges that have come up for me in recent months. While they’re not all directly linked to ankylosing spondylitis (AS), I believe that many of you will relate to some of the lessons I’ve learned. In mid-September, I was dealing with a persistent symptoms flare, so I made an appointment to see my rheumatologist.
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May 17, 2024 | 
cushingsdiseasenews.com | Marisa Wexler |Patricia Inacio |Iqra Mumal
People with Cushing’s syndrome have an increased risk of venous thromboembolism (VTE), that is, dangerous blood clots that obstruct the normal flow of blood through veins, but most treatment centers don’t have standard procedures for reducing VTE risk in Cushing’s patients, a study indicates.
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Apr 15, 2024 | 
copdnewstoday.com | Marisa Wexler |Caroline Gainer |Margarida Maia |Iqra Mumal
A new campaign will highlight the ways certain jobs, including those related to mining, agriculture, and manufacturing, can increase the risk of developing chronic obstructive pulmonary disease (COPD).
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Mar 22, 2024 | 
hemophilianewstoday.com | Jennifer Lynne |Margarida Maia |Iqra Mumal
Note: This column describes the author’s own experiences with Mounjaro (tirzepatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In a previous column, I shared my journey of embarking on a weight loss program using the type 2 diabetes medication Mounjaro. I’ve used it off-label, as I do not have diabetes.
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Feb 26, 2024 | 
ankylosingspondylitisnews.com | Lindsey Shapiro |Jemma Newman |Marisa Wexler MS |Iqra Mumal
People with inflammatory bowel disease (IBD) are at significantly higher risk for various forms of spondyloarthritis (SpA), including ankylosing spondylitis (AS), a study found. But the reverse wasn’t true: Having SpA was not linked to an increased risk of developing IBD, according to the new analysis, which used genetic data. The researchers had aimed to identify relationships between the two conditions, which often co-exist among patients.
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Feb 26, 2024 | 
pulmonaryhypertensionnews.com | Patricia Inacio |Margarida Maia |Iqra Mumal |Steve Bryson
A research project to help shed light about why people with the human immunodeficiency virus (HIV) are at higher risk for developing pulmonary hypertension (PH) was awarded a $2.67 million grant. The four-year grant from the National Heart, Lung and Blood Institute, part of the National Institutes of Health, was given to Sharilyn Almodóvar, PhD, at the Texas Tech University Health Sciences Center (TTUHSC) School of Medicine.
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Feb 22, 2024 | 
alzheimersnewstoday.com | Lindsey Shapiro |Forest Ray |Iqra Mumal |Margarida Maia
The U.S. Food and Drug Administration (FDA) has lifted a clinical hold on a Phase 2 trial testing INmune Bio’s investigational treatment XPro1595 in people with Alzheimer’s disease. Regulators issued the hold in 2022 pending additional manufacturing information from INmune. The company addressed some of the FDA’s concerns, but the regulator maintained its hold, seeking more data on the therapy’s long-term potency.
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Feb 15, 2024 | 
lupusnewstoday.com | Marisa Wexler |Marta Costa Figueiredo |Jose Lopes |Iqra Mumal
The antimalarial agent hydroxychloroquine doesn’t appear to lower the risk of preeclampsia during pregnancy in women with lupus, a study reports. The study, “Hydroxychloroquine in lupus pregnancy and risk of preeclampsia,” was published in Arthritis & Rheumatology. Preeclampsia is a pregnancy complication marked by high blood pressure and signs of organ damage, such as high protein levels in the urine.
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Dec 14, 2023 | 
lupusnewstoday.com | Patricia Inacio |Marisa Wexler |Margarida Maia |Iqra Mumal
Among people with systemic lupus erythematosus (SLE), those who develop pulmonary arterial hypertension (PAH), or high blood pressure in the vessels that supply the lungs, appear to be younger at diagnosis and have more severe disease, a study in Japan has found. In SLE patients with PAH, immune-suppressing glucocorticoids are the treatment of choice, followed by vasodilators, or therapies that widen blood vessels to lower blood pressure.
