
Marian McNamee
Broadcast Journalist at BBC Radio CWR
BBC Journalist @BBCCWR Multi-platform content creator. Latest: https://t.co/Xq7IoBUs2i
Articles
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2 weeks ago |
bbc.co.uk | Charlotte Benton |Marian McNamee
Image caption, Founder Kieron O'Toole is a recovering drug addict who set up the project in 2022An addiction support hub which had to close due to a city development plan has relaunched following help from the community. The Dynamo Project, which was based near Coventry city centre, has supported people recovering from drug and alcohol issues since 2022 but proposals for the City Centre South development led to its closure.
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2 weeks ago |
yahoo.com | Josh Sandiford |Marian McNamee
A Coventry mother is "massively relieved" after being told her daughter will now have access to a life-enhancing drug indefinitely. Phoebe's six-year-old daughter Flory lives with CLN2 Batten disease, a rare and untreatable genetic disorder affecting about 40 children in the UK. After months of uncertainty, health bosses this week revealed those already taking or soon to start treatment could continue to have it beyond the end of May.
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Feb 21, 2025 |
msn.com | Marian McNamee |Susie Rack
Continue reading More for You Continue reading More for You
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Feb 21, 2025 |
bbc.com | Marian McNamee
Parents' fears over loss of Batten disease drugSusie RackBBCFlory, six, is thriving on her treatment of Brineura, her mum saysParents of children with a rare neurodegenerative disease say they are in disbelief that they could within months lose access to the only approved treatment shown to slow its progress. CLN2 Batten disease is an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see.
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Aug 16, 2024 |
newsbreak.com | Alice Cullinane |Marian McNamee
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