-
Nov 8, 2024 | 
friedreichsataxianews.com | Elizabeth Hamilton |Jean Ker Walsh |Sean Baumstark |Matt LaFleur
Holding the phone to my ear, I exhaled slowly before speaking into the receiver. I’d dreaded getting this appointment on our calendar and had been waiting on hold to talk to a hospital scheduler. Some trips to the hospital are harder than others when managing my 12-year-old daughter Amelia’s Friedreich’s ataxia (FA). This one was for a routine scan involving an intravenous line (IV) to administer contrast dye, an experience that did not go well last year.
-
Nov 5, 2024 | 
breakingone.com | Matt LaFleur
Skip to main contentSkip to main content Matt LaFleur on Key Focus of Packers' Bye Week Matt LaFleur on Key Focus of Packers' Bye Week You don't have any notifications. Get up-to-the-minute news sent straight to your device. Topics Breaking News Subscribe Weather Alerts Subscribe Secure transaction. Cancel anytime. Account processing issue - the email address may already exist User information Username (Optional) This is the name that will be displayed next to your photo for comments, blog...
-
Aug 29, 2024 | 
friedreichsataxianews.com | Kendall Harvey |Matt LaFleur |Patricia Inacio |Jean Ker Walsh
I recently wrote a column detailing my initial thoughts about the latest chapter in my Friedreich’s ataxia (FA) story: the process of accepting that I need to transition to a wheelchair. This shift is incredibly daunting, not only physically, but emotionally, logistically, and financially. Where do I start? Since there’s no playbook for this process, I decided that I should address the emotional and logistical sides first and simultaneously, so that’s what I’ve started to do.
-
May 17, 2024 | 
friedreichsataxianews.com | Elizabeth Hamilton |Matt LaFleur |Kendall Harvey |Lindsey Shapiro
The smooth, yellow rivets on the school bus caught my eye as it pulled up to pick up my 11-year-old daughter, Amelia. How often had I stared at them and not seen them? Then I noticed the grinning face of a young child waving at me through a window of the bus. My face brightened with a smile, and I turned to help Amelia up the stairs. I asked if the little girl was new, and Amelia’s reply shocked me: “Mom, she is always there. She waves at you every morning.” I must have been on autopilot.
-
Mar 4, 2024 | 
friedreichsataxianews.com | Jean Ker Walsh |Matt LaFleur |Marisa Wexler |Margarida Maia
I recently returned from a fun vacation with my husband, Dave, and two friends at the Grand Canyon and Las Vegas. We saw a lot, ate a lot, and laughed a lot. At this moment, my quality of life (QoL) feels great. But that’s not the case all the time. Sometimes my QoL is rotten, such as when my debilitating fatigue won’t allow me the energy to do something I want to do, or when I experience difficult life events, like my mom’s death.
-
Dec 19, 2023 | 
acmepackingcompany.com | Matt LaFleur |Kris Burke
MARK HOFFMAN/MILWAUKEE JOURNAL SENTINEL via Imagn Content Services, LLC Green Bay Packers head coach Matt LaFleur can design and scheme as well as anyone in the National Football League. He’s done a good job developing quarterback Jordan Love and setting up the Packers for continued success at the game’s most important position. He’s a very smart coach and person. He’s also a total idiot.
-
Nov 21, 2023 | 
friedreichsataxianews.com | Margarida Maia |Marisa Wexler |Matt LaFleur |Iqra Mumal
Coenzyme Q10 (CoQ10), an antioxidant that occurs naturally in the body and is found in some foods, may help to treat Friedreich’s ataxia and other neurological diseases, according to a review article. The review, “Involvement of Coenzyme Q10 in Various Neurodegenerative and Psychiatric Diseases,” was published in Biochemistry Research International by a team of researchers in Iran. CoQ10 is a vitamin-like substance that helps the body work well and stay healthy.
-
Oct 31, 2023 | 
friedreichsataxianews.com | Margarida Maia |Jacob Harney |Marisa Wexler |Matt LaFleur
Three researchers in the U.S. have each been awarded a grant from the Friedreich’s Ataxia Research Alliance (FARA) to explore new strategies for treating Friedreich’s ataxia (FA), the nonprofit announced on its scientific news page. The newest FARA grant recipients are three professors from across the U.S. — Stephanie Cherqui, PhD, from the University of California, San Diego, Mark Payne, MD, from the Indiana University School of Medicine, and Shannon Boye, PhD, from the University of Florida.
-
Aug 25, 2023 | 
wisportsheroics.com | Matt LaFleur |Tyler Koerth
Milwaukee Brewers fans favorite time of the year is almost upon us. That is the month of September. During this month manager Craig Counsell has historically done very well and utilized roster expansions to his advantage. A few years ago the rules changed and now active rosters can only increase by two players for September call ups. Here we will take a look at three possible call up candidates who are all currently not on the 40-man roster. Three Milwaukee Brewers September call up candidates.
-
Aug 24, 2023 | 
wisportsheroics.com | Matt LaFleur |Robin Adams
The 2023 NFL regular season is just weeks away and the Green Bay Packers are winding down their preseason preparations, as is every team. On Wednesday, the team held its final practice that would be open to the public. It was a day that approach 100 degrees and felt even hotter due to the heat index.
